Networking, cooperation and empowerment are our strongest values.
It is vital that we cooperate closely with people living with OI, their families, researchers, clinicians and support networks. Our aim is to improve the quality of life of people living with OI. We strive towards early access to diagnosis and competent medical treatment, follow-up and social support of people with OI from all age groups and countries.
People with osteogenesis imperfecta are experts in and advocates for their own health condition. Many people with OI live full and happy lives, despite the challenges caused by their health condition. The OIFE’s vision is that one day the society through national and international policies will allow people with OI to live active and independent lives in an inclusive society.