Ordinary members
Only national organizations for OI in Europe can become ordinary members of OIFE. Ordinary members appoint a representative (with substitutes) who is the contact point for OIFE during the year and who has a vote at the General Assembly.
Osteogenesis Imperfecta Austria
Eva Sacherer
austria@oife.org
Zelhulp Osteogenesis Imperfecta vzw
Filip de Gruytere
belgium-vla@oife.org
Dansk Forening for Osteogenesis Imperfecta
Malene Sillas Jensen
denmark@oife.org
The Finnish Osteogenesis Imperfecta Association
Teresia Harri
finland@oife.org
Association de l’Ostéogenèse Imparfaite
Jean Moitry
france@oife.org
arasrulyofili osteogeneziT daavadebulTa daxmarebis asociacia ‘SuSis bavSvebi’
Davit Burjanadze
georgia@oife.org
Deutsche Gesellschaft für Osteogenesis Imperfecta – Betroffene
Andrea Kiel
germany@oife.org
Associazione Italiana Osteogenesi Imperfetta – AS.IT.O.I.
Simona Paveri
italy@oife.org
Latvijas Osteogenesis Imperfecta Biedrība (LOIB)
Dace Liepina
latvia@oife.org
Vereniging Osteogenesis Imperfecta
Taco van Welzenis
netherlands@oife.org
Norsk Forening for Osteogenesis Imperfecta
Inger-Margrethe Stavdal Paulsen
norway@oife.org
Stowarzyszenie Osób z Wrodzona Lamliwoscia Kosci (O.I.) – Polska
Aneta Gałązka
poland@oife.org
Associação Portuguesa de Osteogénese Imperfeita
Céu Barreiros
portugal@oife.org
Asociaţia Română de Osteogenesis Imperfecta
Christian Florin Dănănău
romania@oife.org
Хрупкие люди ‘Fragile Children’
Elena Meshcheryakova
russia@oife.org
Asociacion Nacional Huesos de Cristal Espana
Julia Piniella Martín
spain@oife.org
Sveriges Förening för Osteogenesis Imperfecta (SFOI)
Henrik Karlsson
sweden@oife.org
Schweizerische Vereinigung Osteogenesis Imperfecta SVOI
Nadja Kreisser
switzerland@oife.org
Brittle Bone Society – BBS
Patricia Osborne
uk@oife.org
Associate members
National OI-organizations outside Europe can become associate members. Associate members appoint a representative (with substitutes) who is the contact point for OIFE during the year, but does not have a vote at the General Assembly.
Osteogenesis Imperfecta Society Australia
Amanda Reimann
australia@oife.org
Canada Osteogenesis Imperfecta Society (COIS)
Stephanie Jacinta Whyte
canada@oife.org
Fundación de Osteogénesis Imperfecta Chile (FOICH)
Andrea Medina
chile@oife.org
China Dolls
Zhang Xiaoli
china@oife.org
Zero One
Sun Yue (Luna Sun)
zeroone@oife.org
Fundacion Ecuatoriana de Osteogenesis Imperfecta
Lucia Travez
ecuador@oife.org
Osteogenesis Imperfecta Foundation Ghana
Justina Yiadom – Boakye
ghana@oife.org
Indian Osteogenesis Imperfecta Foundation (IOIF)
Archana Ravindra Palahalli
india@oife.org
“Patients with Rare Bone Diseases”
Assem Dossanova
kazakhstan@oife.org
Angelitos de cristal, i.a.p.
Fundación mexicana para la atención de personas con Osteogenésis Imperfecta
Elisa Ruiz Salva
mexico@oife.org
Osteogenesis Imperfecta Foundation Nigeria
Tarela Aghanti
nigeria@oife.org
OI Panamá
Jesús Camilo Osorio Barahona
panama@oife.org
Asociación Osteogénésis Imperfecta del Perú
Isis Atuncar
peru@oife.org
Brittle Bones South Africa
Rageema Livingstone
southafrica@oife.org
Osteogenesis Imperfecta Foundation
Tracy Hart
usa@oife.org
Supporting members
Any national or international organization related to osteogenesis imperfecta who doesn’t fit into the other categories can become a supporting member. OIFE has two types of supporting members at the moment – research foundations and aid organizations helping individuals in developing countries.
Research foundations
Christine Coppin
afboi@oife.org
Julia Piniella Martín
ahucefoundation@oife.org
Dagmar Mekking
care4bb@oife.org