Social Network Coordinators
The OIFE does not in any case provide financial support to individuals. We can provide advice and peer support and help to find OI-groups or doctors where the actual person lives. In some cases we use our list of professionals to find local support and skilled OI professionals.
The Social Network Coordinator’s role is to guide individuals who needs help to:
- find an organization or support group in their country
- find information about OI
- find treatment or professionals with knowledge about OI in their country
- start an organization in a new country
Currently Maria Barbero and Ute Wallentin are serving as our Social Coordinators. We are looking for more volunteers if you are interested!
The coordinators also try to connect individuals in new countries and encourage the establishment of new groups and OI-organizations.