OIFE supports and encourages the advancement into research to find new treatments, improve diagnosis and aid a better understanding of OI. Sometimes we are directly involved in research by co-authoring scientific articles.

This is a list of scientific articles where a volunteer from OIFE has contributed as co-author:

2023

The patient clinical journey and socioeconomic impact of osteogenesis imperfecta: a systematic scoping review

Patient-reported experience of clinical care of osteogenesis imperfecta (OI) during the COVID-19 pandemic

2021

Patients’ priorities and expectations on an EU registry for rare bone and mineral conditions

PUBLISHED OI RESEARCH

OIFE do not keep a list of all the published research in OI. But our associate member The OI Foundation (OIF) publish a list of newly published research in OI. You can find it here.