Upcoming events hosted by OIFE


The Events Calendar

OIFE keeps an updated calendar of events taking place in the OI-community as well as events related to rare bone diseases. The events calendar is divided in two main sections. The first section include events organized by OIFE and our member organizations. The second sections include events by and for professionals or bigger events from the international rare disease community. Please contact us at office@oife.org if you are organizing an event that should be included in our calendar!

The Annual General Meeting

Each year all delegates are invited to the Annual General Meeting (AGM) also called General Assembly. Anyone from our member organizations can attend the AGM. In addition OIFE volunteers, volunteers from other organizations, professionals and other people with an interest in OIFE can be invited. At the AGM the Board accounts for OIFE’s activities in the past year, future plans and policies are discussed and members exchange news and ideas. Read about past OIFE AGMs here.

The Youth Events

Every year one of OIFE’s member organizations hosts the OIFE Youth Event. This is an informal meeting for young people with OI. The age limit has varied, but the event is usually open to people between the age 16 and 30 – 35.

The main goal of the OIFE Youth Events is to gather youth from all over Europe to exchange thoughts and ideas about being young with OI and to network in order to engage future volunteers. Read about past youth events here.

Youth event on boat

OIFE Investigator Meetings

In 2022 OIFE hosted our first OIFE Investigator Meeting. Our aim was to present an overview of current OI-research (basic and clinical) in Europe and beyond. The target group was primarily researchers and clinicians working with OI. You can find reports from previous meetings below.

Topical meetings

OIFE’s Topical Meetings usually take place approximately every third year. The purpose of the events is to create an arena where interested professionals and experienced specialists from all over the world can meet and exchange knowledge and experience on a specific OI-related topic. Relevant topics are chosen by the Board – usually because they need extra focus. Former topical meetings have included:


Attendance at other OI-conferences

The OIFE try to attend the major conferences with the topic of osteogenesis imperfecta as well as conferences related to children with bone diseases (ICCBH). We have attended the following conferences on OI & brittle bone diseases:

202214th conference on Osteogenesis Imperfecta 2022 – Sheffield, UK – download abstract book
2022ICCBH, Dublin, Ireland – search abstracts
2020ICCBH Virtual Forum, online – search abstracts
2019ICCBH, Salzburg, Austria – search abstracts
201713th International Conference on OI (OIOslo2017) – Oslo, Norway – download abstract book
2017ICCBH, Würzburg, Germany – search abstracts
2016OI in 2016 (Unbreakable Alliance), Lisbon, Portugal – download abstract book
2015ICCBH, Salzburg, Austria – search abstracts
201412th International Conference on OI – Wilmington, Delaware, USA – download abstract book
201111th International Conference on OI – Dubrovnik, Croatia
200810th International Conference on OI – Ghent, Belgium – download abstract book
20059th International Conference on OI – Annapolis, Maryland, USA
20028th International Conference on OI – Annecy, France
Leaflets OI in 2016

The OIFE regards it as vital that patient representatives are allowed to participate in scientific conferences, where the target group is mainly professionals. Without this opportunity we lose our possibility of doing important networking and keeping up with what’s going on in the world of research & development.

We aknowledge that these events are for the professionals and we don’t expect them to be adapted to our needs (except from physical adaptations). But we do expect to be allowed to participate – as representatives from OI-organizations worldwide.

Translate »