Events

Upcoming events hosted by OIFE

2023

• February 27th OIFE Representatives Drop In session – how we can use awareness campaigns
• June 9th -10th 2023 OIFE Topical Meeting, Stockholm, Sweden
• June 10th – 11th 2023 OIFE AGM, Stockholm, Sweden
• September 7th – 10th OIFE Youth Event, Venice, Italy

The Events Calendar

OIFE keeps an updated calendar of events taking place in the OI-community as well as events related to rare bone diseases. The events calendar is divided in two main sections. The first section include events organized by OIFE and our member organizations. The second sections include events by and for professionals or bigger events from the international rare disease community. Please contact us at office@oife.org if you are organizing an event that should be included in our calendar!

The Annual General Meeting

Each year all delegates are invited to the Annual General Meeting (AGM) also called General Assembly. Anyone from our member organizations can attend the AGM. In addition OIFE volunteers, volunteers from other organizations, professionals and other people with an interest in OIFE can be invited. At the AGM the Board accounts for OIFE’s activities in the past year, future plans and policies are discussed and members exchange news and ideas. Read about past OIFE AGMs here.

The Youth Events

Every year one of OIFE’s member organizations hosts the OIFE Youth Event. This is an informal meeting for young people with OI. The age limit has varied, but the event is usually open to people between the age 16 and 30 – 35.

The main goal of the OIFE Youth Events is to gather youth from all over Europe to exchange thoughts and ideas about being young with OI and to network in order to engage future volunteers. Read about past youth events here.

OIFE Investigator Meetings

In 2022 OIFE hosted our first OIFE Investigator Meeting. Our aim was to present an overview of current OI-research (basic and clinical) in Europe and beyond. The target group was primarily researchers and clinicians working with OI.

Topical meetings

OIFE’s Topical Meetings usually take place approximately every third year. The purpose of the events is to create an arena where interested professionals and experienced specialists from all over the world can meet and exchange knowledge and experience on a specific OI-related topic. Relevant topics are chosen by the Board – usually because they need extra focus. Former topical meetings have included:

• “See, Hear, Smile!” – eyes, ears and teeth in OI (Latvia 2019)
• “Soft Issues & Soft Tissues” – Physical challenges of adults with OI (Norway 2015)
• “Fragile Bones – Unbreakable Spirits?” – Psychosocial aspects in OI (Portugal, 2012)
• “OI in Motion” – Physiotherapy and rehabilitation (Germany, 2009)
• Orthopaedic aspects in OI (Rome, 2006)

Attendance at other OI-conferences

The OIFE try to attend the major conferences with the topic of osteogenesis imperfecta as well as conferences related to children with bone diseases (ICCBH). We have attended the following conferences on OI & brittle bone diseases: