The Annual General Meeting (AGM)
Each year all delegates are invited to the Annual General Meeting (AGM). Anyone from our member organizations can attend the AGM. In addition OIFE volunteers, volunteers from other organizations, professionals and other people with an interest in OIFE can be invited. At the AGM the EC accounts for OIFE’s activities in the past year, future plans and policies are discussed and members exhange news and ideas.
The Youth Events
Every year one of OIFE’s member organizations hosts the OIFE Youth Event. This is an informal meeting for young people with OI. The age limit has varied, but the event is usually open to people between the age 16 and 30 – 35. The main focus is to gather youth from all over Europe to exchange thoughts and ideas about being young with OI and to network in order to engage future volunteers.
OIFE’s Topical Meetings usually take place approximately every third year. The purpose of the events is to create an arena where interested professionals and experienced specialists from all over the world can meet and exchange knowledge and experience on a specific OI-related topic. Relevant topics are chosen by the EC – usually because they need extra focus. Former topics have included:
- Orthopaedic aspects
- Physiotherapy and rehabilitation (OI in motion – Germany, 2009)
- Psychosocial aspects in OI (Fragile Bones – Unbreakable Spirits? Portugal, 2012)
- Physical challenges on adults with OI (Soft Issues & Soft Tissue, Norway 2015)
Attendance at other OI-conferences
The OIFE try to attend the major conferences with the topic of osteogenesis imperfecta as well as conferences related to children with bone diseases (ICCBH). We have attended the following conferences on OI & brittle bone diseases:
|2017||13th International Conference on OI (OIOslo2017) – Oslo, Norway|
|2017||ICCBH, Würzburg, Germany|
|2016||OI in 2016 (Unbreakable Alliance), Lisbon, Portugal|
|2015||ICCBH, Salzburg, Austria|
|2014||12th International Conference on OI – Wilmington, Delaware, USA|
|2011||11th International Conference on OI – Dubrovnik, Croatia|
|2008||10th International Conference on OI – Ghent, Belgium|
|2005||9th International Conference on OI – Annapolis, Maryland, USA|
|2002||8th International Conference on OI – Annecy, France|
The OIFE regards it as vital that patient representatives are allowed to participate in scientific conferences, where the target group is mainly professionals. Without this opportunity we lose our possibility of doing important networking and keeping up with what’s going on in the world of research & development.
We aknowledge that these events are for the professionals and we don’t expect them to be adapted to our needs (except from physical adaptations). But we do expect to be allowed to participate – as representatives from OI-organizations worldwide.