The Events Calendar
OIFE keeps an updated calendar of events taking place in the OI-community as well as events related to rare bone diseases. The events calendar is divided in two main sections. The first section include events organized by OIFE and our member organizations. The second sections include events by and for professionals or bigger events from the international rare disease community. Please contact us at email@example.com if you are organizing an event that should be included in our calendar!
The Annual General Meeting (AGM)
Each year all delegates are invited to the Annual General Meeting (AGM). Anyone from our member organizations can attend the AGM. In addition OIFE volunteers, volunteers from other organizations, professionals and other people with an interest in OIFE can be invited. At the AGM the EC accounts for OIFE’s activities in the past year, future plans and policies are discussed and members exhange news and ideas. Read about upcoming and past OIFE AGMs here.
The Youth Events
Every year one of OIFE’s member organizations hosts the OIFE Youth Event. This is an informal meeting for young people with OI. The age limit has varied, but the event is usually open to people between the age 16 and 30 – 35.
The main goal of the OIFE Youth Events is to gather youth from all over Europe to exchange thoughts and ideas about being young with OI and to network in order to engage future volunteers. Read about upcoming and past youth events here.
OIFE’s Topical Meetings usually take place approximately every third year. The purpose of the events is to create an arena where interested professionals and experienced specialists from all over the world can meet and exchange knowledge and experience on a specific OI-related topic. Relevant topics are chosen by the EC – usually because they need extra focus. Former topical meetings have included:
- “See, Hear, Smile!” – eyes, ears and teeth in OI (Latvia 2019)
- “Soft Issues & Soft Tissues” – Physical challenges of adults with OI (Norway 2015)
- “Fragile Bones – Unbreakable Spirits?” – Psychosocial aspects in OI (Portugal, 2012)
- “OI in Motion” – Physiotherapy and rehabilitation (Germany, 2009)
- Orthopaedic aspects in OI (Rome, 2006)
Attendance at other OI-conferences
The OIFE try to attend the major conferences with the topic of osteogenesis imperfecta as well as conferences related to children with bone diseases (ICCBH). We have attended the following conferences on OI & brittle bone diseases:
|2019||ICCBH, Salzburg, Austria – search abstracts|
|2017||13th International Conference on OI (OIOslo2017) – Oslo, Norway – download abstract book|
|2017||ICCBH, Würzburg, Germany – search abstracts|
|2016||OI in 2016 (Unbreakable Alliance), Lisbon, Portugal – download abstract book|
|2015||ICCBH, Salzburg, Austria – search abstracts|
|2014||12th International Conference on OI – Wilmington, Delaware, USA – download abstract book|
|2011||11th International Conference on OI – Dubrovnik, Croatia|
|2008||10th International Conference on OI – Ghent, Belgium – download abstract book|
|2005||9th International Conference on OI – Annapolis, Maryland, USA|
|2002||8th International Conference on OI – Annecy, France|
The OIFE regards it as vital that patient representatives are allowed to participate in scientific conferences, where the target group is mainly professionals. Without this opportunity we lose our possibility of doing important networking and keeping up with what’s going on in the world of research & development.
We aknowledge that these events are for the professionals and we don’t expect them to be adapted to our needs (except from physical adaptations). But we do expect to be allowed to participate – as representatives from OI-organizations worldwide.