Matilde Medum Nielsen has volunteered to help on the OIFE Youth Coordinator team. Matilde is from Denmark and was born with OI type III. She has been living in Aarhus her entire life until July 2022, when she moved to Townsville in Australia to study and fulfill her dream of becoming a marine biologist. Besides…
The OIFE Youth Event is an informal meeting for people with osteogenesis imperfecta. The 2023 edition will be hosted by the Italian OI organization Associazione Italiana Osteogenesi Imperfetta on 7th-10th September 2023. Location: Villaggio al mare Marzotto, 44 Viale Oriente, 30016 Lido di Jesolo, Venice, Italy What can I expect at the OIFE Youth Event?…
We received a great amount of applications from a record number of countries, for our second OIFE Youth Event. It’s therefore very sad to announce that the second OIFE Youth Event 2022 in Warsaw has been cancelled. Below you will find a message from the Polish organizers: “Some of you may have heard we have…
OIFE Youth Event 2022 (part 1) took place in the Belgian city Bruges (Brügge) from May 5th to 8th after the last two events were cancelled due to the pandemic. The event was organized by the OIFE Youth Coordinators and the Belgian OI-organization ZOI. And how did it go? Read all about it in this…
Interview with Simey Truong, Germany My name is Simey Truong. I am 26 years old and have OI type 3, so I am bit short (I am only 1.12m tall) and sitting in a wheelchair. During my childhood I had a lot of fractures, but they didn’t stop me from experiencing a lot. I’m a…
Unsolicited advice for non-disabled parents of disabled children By Haley Brown, artist from the US Unsolicited parenting advice from someone who isn’t even a parent is…everyone’s favourite thing, right? I know, I know, it can be really rude and annoying. But I wrote this from a place of deep love – for disabled kids AND…
From May 5 to May 8, 2022 the youth weekend will take place in Bruges, Belgium. Registration is open now and will close February 1st: https://forms.gle/tGH2ZeMkPyPVc8o89 Don’t hesitate to contact the organizers on youth@zoi.be if you have questions!
In Spring 2021 the Russian camp for OI-families organized by Fragile Children was under the motto “Osteonopolis”. The camp participants landed in ancient Greece. They were divided into groups with different political parties and tried their best in creating social programs. Then political candidates would present their programs in the elections and the winner would…
![[Image shows a gouache/ink/pencil cartoon illustration I made in my sketchbook. Against a black background, a yellow orb frames an illustration of me sitting on the floor, crooked white femme with glasses and hair in a messy bun. I look down lovingly at the ghost of kid-me sitting in my lap, and hold the back of her head gently. She looks back at me and holds juniper (fluffy black cat) in her lap. Around the orb is abstract decorative designs of yellow vines, sparkles, and dots.]](https://oife.org/wp-content/uploads/2021/11/Haley-Brown-illustration-877x470.png)
