OIFE Youth Event in Italy

Written by: Malene Sillas Jensen & Lars Nesset Romundstad Time again for young people with OI to come together The 7th of September 2023, it was once again time for the young people of the European OI community to come together. This time in Lido di Jesolo, in the Veneto region of Italy, one hour…


New 2nd OIFE Youth Coordinator

Matilde Medum Nielsen has volunteered to help on the OIFE Youth Coordinator team. Matilde is from Denmark and was born with OI type III. She has been living in Aarhus her entire life until July 2022, when she moved to Townsville in Australia to study and fulfill her dream of becoming a marine biologist. Besides…

Photo of Viaggio al Mare MarzottoEVENTS

OIFE 2023 Youth Event

The OIFE Youth Event is an informal meeting for people with osteogenesis imperfecta.  The 2023 edition will be hosted by the Italian OI organization Associazione Italiana Osteogenesi Imperfetta on 7th-10th September 2023. Location: Villaggio al mare Marzotto, 44 Viale Oriente, 30016 Lido di Jesolo, Venice, Italy What can I expect at the OIFE Youth Event?…


OIFE Youth Meeting 2023 in Italy!

We are happy to announce that the OIFE Youth Meeting will be hosted by As.It.O.I. - the Italian OI organization from the 7th to the 10th of September 2023. The location will be Jesolo, a stunning place by the seaside and near the beautiful city of Venice! A  4-day experience filled with fun, relaxation, and…
Photo from old town WarsawYOUTH

OIFE Youth Event cancelled

We received a great amount of applications from a record number of countries, for our second OIFE Youth Event. It’s therefore very sad to announce that the second OIFE Youth Event 2022 in Warsaw has been cancelled. Below you will find a message from the Polish organizers: “Some of you may have heard we have…


Our trip to Bruges

OIFE Youth Event 2022 (part 1) took place in the Belgian city Bruges (Brügge) from May 5th to 8th after the last two events were cancelled due to the pandemic. The event was organized by the OIFE Youth Coordinators and the Belgian OI-organization ZOI. And how did it go? Read all about it in this…


Inclusion Project for Students with OI

Interview with Jessica Chemtov, Kinesiology student and Galil Osman, Occupational Therapy student; both at McGill University in Montreal, Canada   We both came to learn about OI through our respective disciplines. We are research trainees of Dr. Argerie Tsimicalis who is an Associate Professor at McGill University and a Nurse Scientist at the Shriners Hospitals…

A young girl from Asian origin sitting in a manual wheelchair.OIFE

New OIFE Youth Coordinator

Interview with Simey Truong, Germany My name is Simey Truong. I am 26 years old and have OI type 3, so I am bit short (I am only 1.12m tall) and sitting in a wheelchair. During my childhood I had a lot of fractures, but they didn’t stop me from experiencing a lot. I’m a…

[Image shows a gouache/ink/pencil cartoon illustration I made in my sketchbook. Against a black background, a yellow orb frames an illustration of me sitting on the floor, crooked white femme with glasses and hair in a messy bun. I look down lovingly at the ghost of kid-me sitting in my lap, and hold the back of her head gently. She looks back at me and holds juniper (fluffy black cat) in her lap. Around the orb is abstract decorative designs of yellow vines, sparkles, and dots.]STORIES

10 tips to parents of children with OI

Unsolicited advice for non-disabled parents of disabled children By Haley Brown, artist from the US Unsolicited parenting advice from someone who isn’t even a parent is…everyone’s favourite thing, right? I know, I know, it can be really rude and annoying. But I wrote this from a place of deep love – for disabled kids AND…

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