I stepped off the train with my heart still racing, nostalgia already settling in. It had only been three days, but as I replayed the moments, I realized something remarkable had happened in that little corner of Germany surrounded by nature, just outside the charming town of Duderstadt. The Youth Event organized by DOIG had…
The announcement you were all waiting for is here: The 2026 Youth Event will be hosted by the German OI-organization Deutsche OI Gesellschaft – Glasknochen e. V. in Duderstadt! If you are between 18 and 35, living in Europe and part of the OI community, don’t miss your chance on living an amazing week-end full…
The OIFE Youth Event 2025 was organised by the OI Polish organization (Stowarzyszenie Osób Z Wrodzoną Łamliwoscią Kosci) who took care of delivering an amazing week-end full of unforgettable activities in Warsaw. SEPTEMBER 4TH This year was a bit different from others because we had a special bonus day for those who wanted to do…
Stefanie R. is 26 years old, and currently living in the vibrant city of Berlin. She wanted to join the OIFE Social Network Team after having met young people with OI during her volunteer service in Ghana, where people had never met anyone else with the condition — or even heard of OI organizations. Her…
To celebrate Rare Disease Day, the pharmaceutical company Mereo Biopharma invited Ferre Castrel and Martijn Dillen from Belgium to its headquarters in London to talk about their lives with OI. OIFE Magazine reached out to them to learn about the experience. Hi guys, thanks for doing this interview! Can you briefly introduce yourselves? Ferre: “Hello!…
The OIFE Youth event 2025 will take place from 4th to 7th of September 2025 in Warsaw, Poland. Target group: People with OI age 18-35 from European countries. The goals of the OIFE Youth Event are: * sharing experience & ideas across borders; * networking and getting to know young people with OI in other…
SAVE THE DATE! This year the Polish OI-organization Stowarzyszenie Osób z Wrodzoną Łamliwością Kości – Polska is organizing the Youth Event 2025 in Warsaw. If you have between 18 and 35, living in Europe and part of the OI community: this is your chance to live an amazing experience! Registration coming soon…
Written by Silvia Falcier, OIFE Youth coordinator Whoever is reading this article is probably holding their phone with fingers that curl in unusual ways as they stretch upward – or maybe the reader knows someone with this unique characteristic. One thing is certain: if we are here to read about Osteogenesis Imperfecta, we are also…
SILVIA FALCIER Who are you and what is your relationship to OI? My name is Silvia, and I am 25 years old. I am an avid enthusiast of fashion and contemporary art. Holding a degree in fashion, if I were to choose a designer to admire, it would undoubtedly be Yohji Yamamoto, a figure who…
