On January 23rd the member organizations of OIFE were invited to the OIFE Leadership Meeting 2023. The purpose of the meeting was to inform the organizations about events and activities going on in the OIFE. The agenda included the following topics: News from OIFE incl. clinical trials Launch of OIF & OIFE pain survey EuRR-Bone…
We are very happy to announce that the lengthy process of reestablishing Osteogenesis Imperfecta Federation Europe (OIFE) in Belgium has now come to an end. OIFE is reestablished as a new legal entity in Belgium and dissolved as a legal entity in the Netherlands. Why did we do this? The process started because we had…
Are you looking for a PhD position in molecular/cell biology? Check out the doctoral position of molecular/cell biologist at the Centre for Connective Tissue Research of Dr. D. Micha, Human Genetics Department, Amsterdam UMC! The PhD student will be involved in the development of pharmacological and gene therapy for the rare genetic bone fragility disorder Osteogenesis…
The second part of OIFE’s annual meeting on June 4th 2022 was an educational webinar open to anyone. And a diverse group of ca 80 participants including OIFE-people, clinicians, researchers, industry people and other interested individuals came together to hear about news from the international OI-community. News from OIFE, ERN BOND & others The first…
We invite you to attend the annual OIFE Educational Webinar on June 4th from 13.30 – 17.00 CET (11.30 – 15.00 Universal Standard Time), which will take place online on Zoom. The webinar includes news about projects and activities from OIFE, patient advocacy education, news from OI-research & development and exchange and updates between OIFE’s…
Are you a member of one of OIFE’s member organizations? Then you can join our Annual General Meeting (AGM) on Zoom. OIFE’s Annual General Meeting 2022 part 1 (the formal business part) will take place via Zoom on June 4th from 11-13PM Central European Time. The AGM provides an opportunity for the Executive Committee (EC)…
Interview with Jessica Chemtov, Kinesiology student and Galil Osman, Occupational Therapy student; both at McGill University in Montreal, Canada We both came to learn about OI through our respective disciplines. We are research trainees of Dr. Argerie Tsimicalis who is an Associate Professor at McGill University and a Nurse Scientist at the Shriners Hospitals…
Osteogenesis Imperfecta Federation Europe (OIFE), The Osteogenesis Imperfecta Foundation and The Brittle Bone Society (UK & Ireland) are offering a travel grant for the OI2022 conference in Sheffield, UK which takes place from Aug 30th – Sep 2nd 2022. Healthcare professionals and researchers working in a low or middle-income country can apply to come to…
Ableism turns disabled people into “others” – and helps non-disabled people stay “normal”. Through the hashtag #AbleismTellsMe different disabled people told their stories about discrimination. What exactly is Ableism? And what is the difference between that and hostility to disabled people? This is what Rebecca Maskos, from Germany, tries to explain in this article. It…
