From February 2021 OIFE got a new ordinary member organization Sveriges Förening för Osteogenesis Imperfecta (SFOI). Get to know them better through this interview with Lars-Göran Wadén, co-chair of SFOI. Who are you and what is your relationship with OI? Therese Rudolfsson and I, Lars-Göran Wadén, currently share the chairmanship of the OI-association in Sweden.…
We were very sad to receive the news about the passing of the founder of the Brittle Bone Society, dr. Margaret Grant. We send our condolences to her family and friends from OIFE and the international OI-community. You can write a Tribute or share a memory on a website dedicated to Dr. Margaret Grant MBE…
And 2020 continue to be a very sad year. We were sad to learn that the founder of the German OI-organization Deutsche OI Gesellschaft – Glasknochen e. V., Mr. Peter Radtke passed away on November 28, 2020 at the age of 77 years. Mr. Radtke was an actor and co-founder of the “Münchner Crüppel-Cabaret”. “I’ve…
Meet our new member – the Indian Osteogenesis Imperfecta Foundation (IOIF) Interview with Archana Ravindra, President IOIF As the president of the Indian Osteogenesis Imperfecta Foundation (IOIF), I am honoured to meet you all. I am Archana Ravindra from Bangalore, India. I was born with OI and was formally diagnosed at the age of 4…
OIFE’s ordinary member organizations are European and our main activities are based in Europe. But we collaborate with OI-organizations around the world with the intention to exchange ideas, information and best practices in order to improve lives of people with OI. We have the great pleasure to announce that the Board of OIFE has voted…
On August 21st 2020 it was 50 years since our partner organization in the USA – Osteogenesis Imperfecta Foundation (OIF) – was founded. On this page, you can see memories from the five decades the organization has been active. And the same day, Inger-Margrethe S. Paulsen (chair of NFOI) and Ingunn Westerheim accidentally discovered a…
Check out the new OI-song «Count on Me» performed by 21 singers from the OI-community in 10 different countries! The project was initiated by supporting member of OIFE Care4BrittleBones. Well done!
Interview with Andrea Medina, FOICH President Who are you and what is your relationship to OI? I am Andrea Medina, founder and president of the board of the Fundación de Osteogénesis Imperfecta Chile, FOICH. I have OI for this my interest is generating actions that allow other people with OI to develop in their lives,…
For the last 2 years experts from many different countries have been working together in Project “Key4OI”. The aim of this project was to develop a core outcome set for OI, children and adults. The focus is on: Outcomes that are relevant for most people with OI, worldwide, througout a life time. Input was provided…
