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New OIFE Member India (IOIF)

Meet our new member – the Indian Osteogenesis Imperfecta Foundation (IOIF) Interview with Archana Ravindra, President IOIF As the president of the Indian Osteogenesis Imperfecta Foundation (IOIF), I am honoured to meet  you all. I am Archana Ravindra from Bangalore, India. I was born with OI and was formally diagnosed at the age of 4…

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MEMBERS

IOIF (India) new OIFE Member

OIFE’s ordinary member organizations are European and our main activities are based in Europe. But we collaborate with OI-organizations around the world with the intention to exchange ideas, information and best practices in order to improve lives of people with OI. We have the great pleasure to announce that the Board of OIFE has voted…

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MEMBERS

Happy 50th anniversary OIF!

On August 21st 2020 it was 50 years since our partner organization in the USA – Osteogenesis Imperfecta Foundation (OIF) – was founded. On this page, you can see memories from the five decades the organization has been active. And the same day, Inger-Margrethe S. Paulsen (chair of NFOI) and Ingunn Westerheim accidentally discovered a…

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MEMBERS

New OI song

Check out the new OI-song «Count on Me» performed by 21 singers from the OI-community in 10 different countries! The project was initiated by supporting member of OIFE Care4BrittleBones. Well done!  

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MEMBERS

New OIFE Member: FOICH CHILE

Interview with Andrea Medina, FOICH President Who are you and what is your relationship to OI? I am Andrea Medina, founder and president of the board of the Fundación de Osteogénesis Imperfecta Chile, FOICH. I have OI for this my interest is generating actions that allow other people with OI to develop in their lives,…

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MEDICAL

Key4OI: An Outcome measurement set

For the last 2 years experts from many different countries have been working together in Project “Key4OI”. The aim of this project was to develop a core outcome set for OI, children and adults. The focus is on: Outcomes that are relevant for most people with OI, worldwide, througout a life time. Input was provided…

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MEMBERS

Founder of Help for OI (HOI) has passed away

Obituary Hinke Panjer, founder of Help OI (HOI) Hinke Panjer, founder of the Help OI (HOI) foundation in the Netherlands passed away on October 24th, at the age of 70 years. Hinke was born 12th of May 1949. Hinke had no easy life, but she developed a great passion to help other people living with…

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MEMBERS

Meet OIF Ghana

My name is Justina Yiadom-Boakye, a mother to a child living with Osteogenesis Imperfecta. I am also the founder and the current President of OIF-Ghana, who recently became a member of the OIFE. Though it might be difficult to give the exact number of people living with the condition here in Ghana, however, using the…

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EVENTS

Happy Birthday ASITOI !

OIFE was present at the 35th Associazione Italiana Osteogenesi Imperfetta Onlus anniversary during the Annual National Meeting and Congress. Anna Rossi also gave a speech about OIFE activities and projects! Happy Anniversary ASITOI! Check out the photos from the 35th anniversary of our Italian friends in Associazione Italiana Osteogenesi Imperfetta Onlus! Looks like a great…

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