MEMBERS

New OI song

Check out the new OI-song «Count on Me» performed by 21 singers from the OI-community in 10 different countries! The project was initiated by supporting member of OIFE Care4BrittleBones. Well done!  

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MEMBERS

New OIFE Member: FOICH CHILE

Interview with Andrea Medina, FOICH President Who are you and what is your relationship to OI? I am Andrea Medina, founder and president of the board of the Fundación de Osteogénesis Imperfecta Chile, FOICH. I have OI for this my interest is generating actions that allow other people with OI to develop in their lives,…

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MEDICAL

Key4OI: An Outcome measurement set

For the last 2 years experts from many different countries have been working together in Project “Key4OI”. The aim of this project was to develop a core outcome set for OI, children and adults. The focus is on: Outcomes that are relevant for most people with OI, worldwide, througout a life time. Input was provided…

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MEMBERS

Founder of Help for OI (HOI) has passed away

Obituary Hinke Panjer, founder of Help OI (HOI) Hinke Panjer, founder of the Help OI (HOI) foundation in the Netherlands passed away on October 24th, at the age of 70 years. Hinke was born 12th of May 1949. Hinke had no easy life, but she developed a great passion to help other people living with…

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MEMBERS

Meet OIF Ghana

My name is Justina Yiadom-Boakye, a mother to a child living with Osteogenesis Imperfecta. I am also the founder and the current President of OIF-Ghana, who recently became a member of the OIFE. Though it might be difficult to give the exact number of people living with the condition here in Ghana, however, using the…

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EVENTS

Happy Birthday ASITOI !

OIFE was present at the 35th Associazione Italiana Osteogenesi Imperfetta Onlus anniversary during the Annual National Meeting and Congress. Anna Rossi also gave a speech about OIFE activities and projects! Happy Anniversary ASITOI! Check out the photos from the 35th anniversary of our Italian friends in Associazione Italiana Osteogenesi Imperfetta Onlus! Looks like a great…

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MEMBERS

OIFE member China Dolls

Oliver Semler The Chinese organization China Dolls became an associate member of OIFE in December 2017. Since then we have been learning about the organization and the different activities they have. During spring 2019 we were very happy and honored to be invited to the 6th National Conference for People with OI in Yantai Shandong,…

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MEMBERS

New OIFE member Ghana

We are happy to announce that the Annual General Meeting has voted in favor of accepting OIF GHANA as a new associate member of OIFE. We now have 35 member organizations in our umbrella. Osteogenesis Imperfecta Foundation Ghana was established in May 2017 and is led by chair Justina Yiadom-Boakye. In the article below you…

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MEMBERS

New OIFE member – Ukraine

Who are you and what is your relationship to OI? My name is Karina and I am mother to 8 year old girl with OI type 3. We live in Rovno, which is located in Western Ukraine. Can you tell us a few words about Ukraine? Ukraine is a country in Eastern Europe. It has…

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