Logo Brittle Bone SocietyCONFERENCES

How to fill the knowledge gaps in OI

On September 4th the Brittle Bone Society had their annual conference online. OIFE was represented by Ingunn Westerheim, who gave a talk together with Dr Laura Tosi and Tracy Hart from the Osteogenesis Imperfecta Foundation on how we can fill the many knowledge gaps we have in OI. The talk tried to explain how people…

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Russia: Mobile Rehab Project

Read our interview with Nadezhda Epishina, M.D. and physical therapist Charitable Fund „Fragile people“ (Russian OI-organization) from Moscow, Russia. The interview was first published in OIFE Magazine 2-2021. Who are you and what is your relationship to OI? My name is Nadezhda Epishina. I am a doctor and a physical therapist. I have been engaged…

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MEMBERS

Around the World Youth Event

The OIFE and the Brittle Bone Society are delighted to host the 2021 Youth Event (digital version). The theme is “Around the World!” From South America to Australasia. Along with a small team of travel mates, you will face challenges in each country, earning Travel Credits to purchase your onward journeys. Which team will cover…

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MEMBERS

New OIFE Member: SFOI Sweden

From February 2021 OIFE got a new ordinary member organization Sveriges Förening för Osteogenesis Imperfecta (SFOI). Get to know them better through this interview with Lars-Göran Wadén, co-chair of SFOI. Who are you and what is your relationship with OI? Therese Rudolfsson and I, Lars-Göran Wadén, currently share the chairmanship of the OI-association in Sweden.…

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Logo Brittle Bone SocietyMEMBERS

Rest in Peace Margaret Grant

We were very sad to receive the news about the passing of the founder of the Brittle Bone Society, dr. Margaret Grant. We send our condolences to her family and friends from OIFE and the international OI-community. You can write a Tribute or share a memory on a website dedicated to Dr. Margaret Grant MBE…

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Rest in Peace Peter Radtke

And 2020 continue to be a very sad year. We were sad to learn that the founder of the German OI-organization Deutsche OI Gesellschaft – Glasknochen e. V., Mr. Peter Radtke passed away on November 28, 2020 at the age of 77 years. Mr. Radtke was an actor and co-founder of the “Münchner Crüppel-Cabaret”. “I’ve…

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New OIFE Member India (IOIF)

Meet our new member – the Indian Osteogenesis Imperfecta Foundation (IOIF) Interview with Archana Ravindra, President IOIF As the president of the Indian Osteogenesis Imperfecta Foundation (IOIF), I am honoured to meet  you all. I am Archana Ravindra from Bangalore, India. I was born with OI and was formally diagnosed at the age of 4…

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MEMBERS

IOIF (India) new OIFE Member

OIFE’s ordinary member organizations are European and our main activities are based in Europe. But we collaborate with OI-organizations around the world with the intention to exchange ideas, information and best practices in order to improve lives of people with OI. We have the great pleasure to announce that the Board of OIFE has voted…

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MEMBERS

Happy 50th anniversary OIF!

On August 21st 2020 it was 50 years since our partner organization in the USA – Osteogenesis Imperfecta Foundation (OIF) – was founded. On this page, you can see memories from the five decades the organization has been active. And the same day, Inger-Margrethe S. Paulsen (chair of NFOI) and Ingunn Westerheim accidentally discovered a…

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