EVENTS

Join us on May 6th for Wishbone Day!

This year, we’re launching #Together4OI as a hashtag to celebrate Wishbone Day – the international awareness day for OI. Read more about how it all started here. With #Together4OI we are shining a light on the incredible work that the OI-organizations are doing on national level and what value they bring to people with OI.…

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Flyer describing conferenceEVENTS

OI Conference in Bologna

Would you be interested in attending a conference about patient engagement in OI research in Bologna, Italy? The conference takes place on June 13th 2024. It is organized by the consortium Remedi4All in collaboration with OIFE, As.It.OI (Italian OI-association), ERN BOND (European Reference Network on Rare Bone Diseases) and EURORDIS (Rare Diseases Europe). Tickets are…

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CONFERENCES

OIFE Investigator Meeting – a success

On the 17th of November 2023, OIFE hosted the second Virtual OIFE Investigator Meeting for the OI research community. 273 people from 48 countries signed up and more than 160 individuals attended the online event. Attendees were a mix of health professionals, scientists, OI clinicians and a lower number of representatives from industry and patient…

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EVENTS

OIFE Investigator Meeting 2023

OIFE Investigator Meeting 2023 – Registration & Abstract Submission open   OIFE together with our Medical Advisory Board, would like to invite you to register for the second virtual European Investigator Meeting for osteogenesis imperfecta (OI). The event will take place on November 17th 2023.   TARGET GROUP -Primarily researchers and clinicians working with OI…

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oife flyer update clinical trial)EVENTS

OIFE Webinar: Update on Clinical Trials 2023

We invite you to register for a 1,5 hour webinar called “Clinical Trial Update 2023”. GOAL & TARGET GROUP The goal of the webinar is to update the OI-community about ongoing clinical trials – both those who are recruiting and others. The target group is anyone interested in OI-related research – both professionals and people…

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Photo of the group OIFE at Stockholm AGMEVENTS

OIFE AGM 2023 in Stockholm

On June 10th and 11th 2023, we came together for OIFE’s Annual General Meeting (AGM). This time we met, in real life, in Stockholm, Sweden. There were approximately 40 people representing 15 ordinary (European) and 4 associate member organizations (incl. USA, Peru, Ahuce Foundation and Care4BrittleBones). On Saturday afternoon we took care of the formal…

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Ingunn giving speechADVOCACY

OIFE at Nordic Rare Disease Summit

In April 2023, for the second time, the Nordic Rare Disease Summit brought together decision makers, healthcare professionals, patient organizations, media, academia and life science companies to elevate rare diseases as a priority area in the Nordic countries. The Summit is a platform for policy discussions and the exchange of good ideas. OIFE’s president Ingunn…

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Photo of Viaggio al Mare MarzottoEVENTS

OIFE 2023 Youth Event

The OIFE Youth Event is an informal meeting for people with osteogenesis imperfecta.  The 2023 edition will be hosted by the Italian OI organization Associazione Italiana Osteogenesi Imperfetta on 7th-10th September 2023. Location: Villaggio al mare Marzotto, 44 Viale Oriente, 30016 Lido di Jesolo, Venice, Italy What can I expect at the OIFE Youth Event?…

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