Interview and translation: Anna Rossi Can you introduce yourself? My name is Veronica Tulli and my stage name is LuluRimmel. I live in Rome, Italy. I am a singer, songwriter and performer. And I am quite confident in saying this. But I do not hide that at least in Italy, this is quite a bold…
Mr. Pablo Ostarek from Spain has OI himself and is a film maker by profession. Now he has a new project, with the topic of overprotection, something many people with OI can relate to. We have asked him to tell us a little bit about his project and his intentions behind the film Esto no…
Who are you and what do you do? My name is I Ketut Budiarsa. I am a Balinese man from Kedewatan, Ubud, Bali, Indonesia. I am the head of Yayasan Cahaya Mutiara Ubud which is a foundation run by people with disabilities, for people with disabilities. I am an accomplished artist and an activist for…
Who are you and what do you do? My name is Mira Thompson and I’m a singer. In what way has OI affected your art? As much as I want to say it hasn’t, I also know it completely affects the way I look at life in general. Which does not mean every song I…
Fabiano Lioi from Italy is an actor, musician and artist with OI. He has published an artistic catalog which is also and above all a journey to discover a condition unknown to many, namely Osteogenesis imperfecta. This interview was first published in OIFE Magazine in spring 2018. Who are you and what do you do?…
Penny Clapcott from the UK has always been very active despite her OI. Having broken four World Records in competitive swimming at the age of 15, she took the challenge of becoming an aereal circus performer. I’m Penny Clapcott and I’m 29 years old from the UK with type 3 OI. I have always been…
Maija Karhunen is a young woman with OI and lives in Helsinki, Finland. She has been working as a dancer, performer and journalist all across Europe. Who are you and what do you do? My name is Maija Karhunen, I’m 29 years old and live in Helsinki, Finland. I mostly work as dancer and performer…
