STORIES

OI athletes at the Paralympics

The Spanish OI-organizations have identified many different athletes with OI who are competing in the ongoing Paralympics in Tokyo. The athletes come from Spain, Greece, The Dominican Republic, USA, Germany, Japan and Great Britain. We wish all the athletes best of luck! Below you can watch the campaign video #WeThe15 which was made to counter…

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STORIES

Artists with OI: Erwin Aljukic

Erwin Aljukic is an actor, dancer, speaker and fashion journalist. Since 1998 he can be seen on TV, in the cinema and at the theater. In addition to acting, he studied fashion journalism and has been working as a freelancer ever since. In 2014 he devoted himself to contemporary dance. Aljukic has been a permanent…

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STORIES

OI & resilience

Some say that people with OI learn resilience from an early age. Shani Dhanda from the UK is featured in a film about people with resilience. She was one of six millennials interviewed and filmed from around the world to bring to life—through her personal story, the key theme from the survey – resilience. Resilience…

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STORIES

Pride & OI

Nikita has a rare form of OI, immigrant background and came out as queer one year ago. She’s now one of the faces of an awareness campaign about being queer and disabled in Norway. Nikita says she’s missing more knowledge about disability and sexuality from teachers and general practitioners. Photo shows Nikita in a PRIDE-parade…

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STORIES

Life as a “Shadow Child”

Often siblings of children with a chronic illness are called “shadow children” because they live in the blind spot of their parents. They are often alone with their grief and put their own needs aside for their siblings’ needs. My name is Kristine Holm Laursen, but just call me Krisser. I am now 26 years…

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OIFE

Founding Fathers and Mothers

In 2020, the founding fathers and mothers of three OI societies sadly passed away. One of them was the first person worldwide to initiate a patient organization for OI. Many were following her example, and some years later, the idea of founding a European umbrella organization was born. Former OIFE president Ute Wallentin, has written…

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MEDICAL

A Quick jab and a glimpse of light

In Denmark some younger people with OI were prioritized to receive the COVID-19 vaccine. Read about the experiences from Jacob below.  Text written by Jacob Ø. Wittorff, member of DFOI All it took was a quick jab, and then it was over. I got my COVID-19 vaccine on a cold but sunny afternoon in January.…

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STORIES

Athletes without Permission

Our Polish delegate Aneta is planning to write an eBook about good examples from people with OI living in Europe who are physically active in different ways. Aneta herself has OI type IV and has tried many different sports and activities: swimming, scuba diving, crossfit and climbing. The project has the working title “Athletes without…

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STORIES

Jeanette Chedda – fighting for diversity!

Through social media we learned that Jeanette Chedda is running for Parliament in the Netherlands. Her main cause is disability politics and fighting for diversity. The elections are coming up in just a few days.  Can you tell us a little bit about yourself? I am Jeanette Chedda (37), I have OI type three. I…

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