Portrait Felipe MateoSTORIES

Artist with OI: Felipe Mateos

For the Artists with OI-column in the OIFE Magazine, we interviewed Felipe Mateos, a stand-up comedian from Spain.  Tell us a bit about yourself! I’m 27 years old and I’ve been a stand-up comedian for eight years. Little by little I am better known in Spain (Television, radio, social networks…) and I have many followers…

READ MORE
STORIES

“OI & Pain” animation film!

Those of you who attended the «Balancing Life with OI» conference in Stockholm for sure remember the opening song «I’ve Got Pains». We have been anxiously waiting to share the animated song with the rest of you, because it was submitted to a film contest. The film with most likes and votes on YouTube wins.…

READ MORE
Flying doctorsSTORIES

Flying OI Experts – Thank you!

Today we would like to express our gratitude to the two OI surgeons Dr. Aldofredo Santana (Venezuela) and Dr. Carlos Pargas (USA) for taking a week off their normally busy schedule and travel all the way from their home countries to Lagos, Nigeria as part of the OIFE Flying OI Expert programme. The 2023 project…

READ MORE
CONFERENCES

Impressions from “Balancing Life with OI”

OIFE’s 5th Topical Meeting “Balancing Life with OI” took place in Stockholm, Sweden, in June 2023. The main topic of this international conference was pain in OI and its impact for instance on physical and mental health, sleep, fatigue, mobility, relationships/families and work/life balance. Here are some impressions from participants: Alessandra Tolaccia My name is…

READ MORE
nick giving talkMEDICAL

Interview with Prof. Nick Bishop

Interview with Nick Bishop, professor of paediatric bone diseases at the University of Sheffield, UK Who are you and what is your relationship to OI? My name is Nick Bishop and I am professor of paediatric bone diseases at the University of Sheffield in the UK. I’ve worked here for the last 25 years (nearly).…

READ MORE
Raul looking tiredMEDICAL

OI & Disability Burn-Out

“Disability Burn-Out”: Internalized Ableism and its consequences! By Raul Krauthausen, disability activist with OI A disability can be stressful and sometimes trigger burnout. Often, one’s own internalized ableism plays a major role – in other words, the pressure of having to gain a raison d’être through performance and functionality. This can rule a lifetime. It…

READ MORE
STORIES

Artist with OI: Jay Manuel aka “Mini producer”

Interview with Jay Manuel, Music Producer and Content creator, Georgia, USA Meet Jay “Mini Producer” Manuel, a music producer and content creator based in Georgia, USA. Despite being hard of hearing and living with Osteogenesis Imperfecta Type 3 and Autism, Jay has dedicated his career to breaking barriers and representing young professionals with disabilities in…

READ MORE
GraveEDUCATIONAL

How do we deal with death & OI?

By Ute Wallentin, OIFE Social Network and Board member of the German OI-Association (DOIG) When OI-children or adults or members in general from our association die, how do we want to deal with the news of their death? And if they die (much too) young, what offers can we make to the surviving relatives? Ute…

READ MORE
STORIES

Artist with OI: Athena Cooper

Athena Cooper is a visual artist and creativity coach based in Calgary, Canada. Self- taught as an acrylic painter, Athena’s paintings are explorations of what it means to live an extraordinary, ordinary disabled life. Please tell us a bit about yourself! I’d describe myself as someone who has had a pretty wide-ranging set of experiences and…

READ MORE
Translate »