RESEARCH

The OIFE Clinical Trial Update

On the 24th of October, OIFE hosted a webinar for the OI community about clinical trials and updates. 235 people from 52 countries signed up. Attendees were a mix of health professionals, scientists, OI clinicians, industry professionals, and individuals with OI and their family members. OIFE is excited to share this current OI study and…

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RESEARCH

The Hospital of No Surprises

The “Puppet theatre” study is a McGill ethically-approved research study aimed at optimizing the surgical experiences of children with Osteogenesis Imperfecta. The purpose of this study is to professionally produce an animated version of a children’s play written by one of our research assistants/artists titled “The Hospital of No Surprises”, and to create an accompanying…

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Geisman GrantRESEARCH

Apply now for the Geisman grant

The Michael Geisman Fellowship Grant program awards funding to post-doctoral trainees who are currently working on projects with clear relevance to osteogenesis imperfecta (OI), or who have projects that will enable them to develop expertise in OI research. Applicant Requirements: Applicant must hold an MD, DDS, DO, or PhD, and be appointed at the level…

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oife flyer update clinical trial)EVENTS

OIFE Webinar: Update on Clinical Trials 2023

We invite you to register for a 1,5 hour webinar called “Clinical Trial Update 2023”. GOAL & TARGET GROUP The goal of the webinar is to update the OI-community about ongoing clinical trials – both those who are recruiting and others. The target group is anyone interested in OI-related research – both professionals and people…

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RESEARCH

Literature review: Fracture risk in adults with OI

Interview with Dr. Winnie Liu, Oregon Health and Science University (OHSU), Portland, Oregon, USA Dr. Winnie Liu is an adult endocrinologist and takes care of patients at Oregon Health and Science University (OHSU) located in Portland, Oregon. Her clinical and research interests are metabolic bone disease with a focus on OI after joining the BBDC (Brittle…

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Clara Isabel RodriguezRESEARCH

Stem Cells and cell therapy (TERCELOI Project)

In OIFE Magazine 2-2023, we interviewed Clara I. Rodríguez who is the group leader of Stem cells and Cell therapy laboratory at Biocruces Bizkaia Health Research Institute in Bilbao, Spain. Our laboratory focuses on the potential of human stem cells and their derivatives for the study of diseases and the development of new therapeutic strategies.…

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CONFERENCES

Sweet home Chicago – OIF Scientific Meeting

By Dr. Lars Folkestad, OIFE Medical Advisory Board Every year the OI Foundation (OIF) host a Scientific Meeting where researchers and clinicians from North America is invited for a 2-and-a-half-day long seminar focused on OI research. Lars Folkestad, member of OIFE’s Medical Advisory Board, joined the meeting in April and reports about it.   Collaboration…

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Graphic cartoon from pooping videoMEDICAL

Bladder and bowel issues in children with OI

Interview with Prof. Gisele Martins, University of Brasilia (UnB), Brazil (main part) and Dr. Argerie Tsimicalis, McGill University, Canada Who are you & what is your relationship to OI? My name is Gisele Martins and I’m a professor of nursing at the University of Brasilia (UnB), Brazil. My involvement with the OI community started seeing…

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RESEARCH

EuRREB: New website for rare registries

EuRREB, the European Registries for Rare Endocrine and Bone Conditions consists of the EuRRECa and EuRR-Bone project. The registries are aimed at maximizing the opportunity for all patients, health care professionals, and researchers to participate and use high quality, patient-centred registries. The aim is to be Europe’s most comprehensive and accessible resource for researchers studying…

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