Illustration of dental implantsRESEARCH

Dental implants in OI

Interview with Dr. Ole Oelerich, Dentist at the Department for Prosthodontics and Biomaterials, University Hospital in Münster, Germany Who are you & what is your relationship to OI? My name is Dr. Ole Oelerich, I am a Dentist at the Department for Prosthodontics and Biomaterials at the University Hospital in Münster, Germany. After completing my…

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Graphic showing bars and linesMEDICAL

Registry Research in Denmark

My name is Lars Folkestad. I am an associate professor and staff specialist at the department of endocrinology at Odense University Hospital. There I am part of the team that follows and cares for adults with OI. We are aiming towards a multi-disciplinary approach to our outpatient OI clinic visits, but most of our efforts…

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RESEARCH

Informal report from IntOI 2020+1

A summary by Lidiia Zhytnik, member of OIFE’s Medical Advisory Board On September 9, 2021 the IntOI 2020+1: Virtual International Meeting Early Stage Investigators Symposium, took place. It was organized by the OI Foundation and chaired by Dr. Joan Marini. The meeting highlighted OI research, performed by young investigators all over the world. The OIFE…

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RESEARCH

Osteoarthritis in OI

Interview with Jane Dahl Andersen, MD with specialty in Endocrinology and Internal Medicine at Lillebælt Hospital, Denmark My name is Jane, I am a MD with specialty in Endocrinology and Internal medicine. My specific interest is in bone and calcium metabolism, in particular the rare disease OI. In the Bente Langdahl group at Aarhus University…

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RESEARCH

OI & fracture risk after pregnancy

Interview with Emilie Karense Lykking, newly graduate doctor from University of Southern Denmark I am a newly graduate doctor from University of Southern Denmark, who found interest in OI during my final year of Med. School. At the moment I am working at the department of endocrinology at Bispebjerg Hospital in Copenhagen. I wrote my…

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MEDICAL

Key4OI – Past, Present and Future

Who are you and what is your relationship to OI? I am Dagmar Mekking from the Netherlands. I am a mother of a 15 year old daughter with OI. Also I am the director of Foundation Care4BrittleBones. The purpose of the foundation is to improve quality of life for people with OI through research. What…

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RESEARCH

Risk of eye disease in OI

Interview with Marie Louise Lyster, medical student from University of Southern Denmark in Odense My name is Marie Louise Lyster. I am a 26-year-old medical student from University of Southern Denmark in Odense, graduating in January 2022. In the beginning of 2021, I started working on my research project about risk of eye diseases in…

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RESEARCH

Help OI-researchers and earn 50$

Are you 18 years or older and do you have OI? Or are you the parent/caregiver of someone aged 0-17 with OI? Are you able to read and write English well? Then OIFE and our collaborators are looking for your help!  The pharma company Ultragenyx is developing a new treatment for OI. To test the…

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Profile photos of four smiling OI-researchersCONFERENCES

OIFE INVESTIGATOR MEETING 2022

SAVE THE DATE – 1st VIRTUAL OIFE INVESTIGATOR MEETING November 18th 2022, Online The umbrella association Osteogenesis Imperfecta Federation Europe (OIFE) is together with members from the Medical Advisory Board of OIFE inviting you to save the date for the very first European Investigator Meeting for osteogenesis imperfecta (OI). This virtual one day meeting will…

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