RESEARCH

Osteoarthritis in OI

Interview with Jane Dahl Andersen, MD with specialty in Endocrinology and Internal Medicine at Lillebælt Hospital, Denmark My name is Jane, I am a MD with specialty in Endocrinology and Internal medicine. My specific interest is in bone and calcium metabolism, in particular the rare disease OI. In the Bente Langdahl group at Aarhus University…

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RESEARCH

OI & fracture risk after pregnancy

Interview with Emilie Karense Lykking, newly graduate doctor from University of Southern Denmark I am a newly graduate doctor from University of Southern Denmark, who found interest in OI during my final year of Med. School. At the moment I am working at the department of endocrinology at Bispebjerg Hospital in Copenhagen. I wrote my…

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MEDICAL

Key4OI – Past, Present and Future

Who are you and what is your relationship to OI? I am Dagmar Mekking from the Netherlands. I am a mother of a 15 year old daughter with OI. Also I am the director of Foundation Care4BrittleBones. The purpose of the foundation is to improve quality of life for people with OI through research. What…

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RESEARCH

Risk of eye disease in OI

Interview with Marie Louise Lyster, medical student from University of Southern Denmark in Odense My name is Marie Louise Lyster. I am a 26-year-old medical student from University of Southern Denmark in Odense, graduating in January 2022. In the beginning of 2021, I started working on my research project about risk of eye diseases in…

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RESEARCH

Help OI-researchers and earn 50$

Are you 18 years or older and do you have OI? Or are you the parent/caregiver of someone aged 0-17 with OI? Are you able to read and write English well? Then OIFE and our collaborators are looking for your help!  The pharma company Ultragenyx is developing a new treatment for OI. To test the…

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Profile photos of four smiling OI-researchersCONFERENCES

OIFE INVESTIGATOR MEETING 2022

SAVE THE DATE – 1st VIRTUAL OIFE INVESTIGATOR MEETING November 18th 2022, Online The umbrella association Osteogenesis Imperfecta Federation Europe (OIFE) is together with members from the Medical Advisory Board of OIFE inviting you to save the date for the very first European Investigator Meeting for osteogenesis imperfecta (OI). This virtual one day meeting will…

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RESEARCH

Anthropology Project About OI

Interview with Ida Vandsøe Madsen, student at the Department of Anthropology at University of Copenhagen, Denmark Ida Vandsøe Madsen is a Ph.D.-student at the Department of Anthropology at the University of Copenhagen. Anthropology is the study of human biological and physiological characteristics and their evolution. She did her Master’s Thesis (final project) on OI as…

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RESEARCH

The OIF Geisman Grant

The Osteogenesis Imperfecta Foundation (OIF) awards Michael Geisman Fellowship grants to post-doctoral trainees who are currently working on projects with clear relevance to OI, or who have projects that will enable them to develop expertise in OI research. Investigators from other countries than the USA, can also apply. The application cycle is now open and…

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BOOSTB4 logoMEDICAL

Announcement on the clinical trial BOOSTB4

In Sweden, the Karolinska Institutet and the Karolinska University Hospital are leading the academic clinical trial BOOSTB4 where we are looking for subjects who have a diagnosis of OI Type III or severe Type IV with a specific collagen mutation. The aim of the clinical trial is to study the safety and efficacy of the…

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