CONFERENCES

New European Rare Bone Network

Yesterday OIFE was happy to co-host the establishing meeting of a multistakeholder rare bone network together with Hypophosphatasie Deutschland e.V. and ANDO Portugal with the kind support of the European Calcified Tissue Society – ECTS and the ICCBH-conference. The background for the initiative was among others connected to OIFE’s project ‘A stronger BOND between us‘.…

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CONFERENCES

OIFE at ICCBH

No time to rest. Tomorrow representatives from OIFE and OIFE’s Medical Advisory Board will be leaving for Salzburg to attend 9th International Conference on Children’s Bone Health which takes place from June 22nd – 25th. Hopefully we will have some time to post about our impressions. OIFE is also part of the ad hoc organizing…

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CONFERENCES

See, Hear, Smile! in Riga

From Friday 14th of June to Saturday 15th, Riga, Latvia was the place to be for the OI community. On Friday, the sun was shining, temperatures were high, people in the streets wore summer clothes and highly-needed sunglasses, stopping every now and then to appreciate the beauty of the city or some refreshments at a…

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CONFERENCES

Video lecture BI

One of the invited speakers at See, Hear, Smile was Suken A. Shah from Wilmington, Delaware, USA who gave a talk about basilar invagination (BI). Unfortunately dr. Shah could not come all the way to Latvia, so the talk was given via a video lecture. The video lecture of Dr. Suken A. Shah’s talk about…
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Participants of topical meeting See, Hear, Smile!CONFERENCES

Abstracts See, Hear, Smile!

A great topical meeting has come to an end. More than 82 people from 22 countries met in Riga, Latvia from June 14th – 15th to discuss and learn about eyes, ears and teeth of people with OI. The event had a lot of positive feedback already, and we feel we succeeded in creating an…

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CONFERENCES

See, Hear, Smile! – Day 2

See, Hear, Smile! – a topical meeting on osteogenesis imperfecta (OI) gathered an international panel of experts and patient representatives from the 14th to the 15th of June in Riga, Latvia to discuss dental, hearing, vision and craniofacial issues in osteogenesis imperfecta (OI). The meeting gathered more than 80 participants from 22 countries. These are…

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CONFERENCES

See, Hear, Smile! – Day 1

The topical meeting See, Hear, Smile!  hosted by OIFE gathered an international panel of experts and patient representatives from the 14th to the 15th of June in Riga, Latvia. The purpose was to discuss dental, hearing, vision and craniofacial issues in osteogenesis imperfecta (OI). The meeting gathered more than 80 participants from 22 countries. These…

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CONFERENCES

Identifying Gaps in OI Research

By Dr. Antonella Forlino, member of OIFE’s Medical Advisory Board Report from OIF Investigator meeting 2019 It was a great pleasure to be sponsored by OIFE to participate at the 19th Annual OI Foundation (OIF) Scientific Meeting held in Chicago on April 10-12 and co-chaired by Dr Marini and Dr Raggio. The American Scientific Community…

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CONFERENCES

Networking in Brussels

OIFE had several representatives in Brussels attending the 3rd EURORDIS Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies (https://www.eurordis.org/3rd-access-symposium) in February 2019. During the conference there were also opportunities to network. Here with representatives from Open App, Bindeweefsel.Be and Mereo. What was interesting to know? Our Honorary Member Taco van Welzenis gives an…

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