CONFERENCES

Save the Date – OI2025 in Hongkong

We have all been waiting for this to be announced. Now it has been confirmed – the 15th international scientific conference on OI will take place in Hong Kong, from October 29-31, 2025. It will be organized by Hong Kong University and the conference chair is orhopaedic surgeon dr. Michael To. Follow OI20225.org and oife.org…

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CONFERENCES

OIFE at International Conference on Children’s Bone Health

The International Conference on Children’s Bone Health (ICCBH) in Salzburg, Austria from June 22-25, 2024 brought interesting talks and good networking opportunities. The OIFE was represented by Inger-Margrethe and Alessandra and Tracy Hart was there from the Osteogenesis Imperfecta Foundation. A meeting was also held between the ISCBH (International Society for Children’s Bone Health) and…

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CONFERENCES

OIFE at the European Congress of Endocrinology

From May 11-14, 2024, Taco van Welzenis represented OIFE at the European Congress of Endocrinology (ECE) 2024 in Stockholm including the annual meeting of the Patient Advocacy groups (PAG). OIFE became an affiliated PAG member of the European Society on Endocrinology (ESE) in 2024. You can get more info about the conference by visiting this…

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CONFERENCES

RareX Conference in South Africa

By Rageema Livingstone, President of the South African OI-association (Associate OIFE member) For four days, Johannesburg pulsed with the collective energy of hope and collaboration as RareX unfolded, hosted by Rare Diseases South Africa (RDSA). This pivotal event, held from February 14th to 17th, 2024, brought together a diverse tapestry of voices – patient groups, healthcare…

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CONFERENCES

Remedi4All – Meeting on OI in Bologna

The Remedi4All consortium & the MOI-A Trial (Losartan) Information provided by Claudia Fuchs, EURORDIS What is Remedi4All? The EU-funded multidisciplinary consortium REMEDi4ALL (Repurposing Medicines for All) has an ambition to establish a European research and innovation eco-system that facilitates fast and cost-effective patient-centric development and implementation of repurposed medicines, meeting high unmet medical needs in…

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CONFERENCES

OIFE Investigator Meeting – a success

On the 17th of November 2023, OIFE hosted the second Virtual OIFE Investigator Meeting for the OI research community. 273 people from 48 countries signed up and more than 160 individuals attended the online event. Attendees were a mix of health professionals, scientists, OI clinicians and a lower number of representatives from industry and patient…

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CONFERENCES

Balancing Life with OI – now on YouTube!

Most of the talks and presentations from OIFE’s topical meeting “Balancing life with OI” in Stockholm June 2023 are now available with English subtitles in OIFE’s Playlist on YouTube. You can have auto texting in other languages, by clicking on settings. The various talks cover the causes, assessment, and management of pain in OI and…

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CONFERENCES

Impressions from “Balancing Life with OI”

OIFE’s 5th Topical Meeting “Balancing Life with OI” took place in Stockholm, Sweden, in June 2023. The main topic of this international conference was pain in OI and its impact for instance on physical and mental health, sleep, fatigue, mobility, relationships/families and work/life balance. Here are some impressions from participants: Alessandra Tolaccia My name is…

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CONFERENCES

Sweet home Chicago – OIF Scientific Meeting

By Dr. Lars Folkestad, OIFE Medical Advisory Board Every year the OI Foundation (OIF) host a Scientific Meeting where researchers and clinicians from North America is invited for a 2-and-a-half-day long seminar focused on OI research. Lars Folkestad, member of OIFE’s Medical Advisory Board, joined the meeting in April and reports about it.   Collaboration…

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