SILVIA FALCIER Who are you and what is your relationship to OI? My name is Silvia, and I am 25 years old. I am an avid enthusiast of fashion and contemporary art. Holding a degree in fashion, if I were to choose a designer to admire, it would undoubtedly be Yohji Yamamoto, a figure who…
NATALIA VERDUZCO. Who are you and what is your relationship to OI? My name is Natalia Verduzco, I am 29 years old, born in the beautiful country of Mexico and being very proudly both French and Mexican. I belong to the amazing community of OI-people myself, enjoying my path through this world one wheel at…
Matilde Medum Nielsen has volunteered to help on the OIFE Youth Coordinator team. Matilde is from Denmark and was born with OI type III. She has been living in Aarhus her entire life until July 2022, when she moved to Townsville in Australia to study and fulfill her dream of becoming a marine biologist. Besides…
Hello everyone! 35 years ago I was born in Bruges, Belgium with OI type 3. From birth, I was involved with the Belgian Patient Organization ZOI. In 2020 I got elected to the board of ZOI. I love to be with other people who have OI to share experiences, knowledge, advice both as a friend, but…
Interview with Simey Truong, Germany My name is Simey Truong. I am 26 years old and have OI type 3, so I am bit short (I am only 1.12m tall) and sitting in a wheelchair. During my childhood I had a lot of fractures, but they didn’t stop me from experiencing a lot. I’m a…
