The OIFE Youth Event 2025 was organised by the OI Polish organization (Stowarzyszenie Osób Z Wrodzoną Łamliwoscią Kosci) who took care of delivering an amazing week-end full of unforgettable activities in Warsaw. SEPTEMBER 4TH This year was a bit different from others because we had a special bonus day for those who wanted to do…
This year, the Young Event 2024 took place in Norway where our host, the Norsk Forening for Osteogenesis Imperfecta (NFOI) took care of organizing a week-end full of adventures. SEPTEMBER 12th: Everything started on a beautiful and sunny day in Oslo, where we took the bus to our week-end destination: Eidene. After a two hours…
Written by: Malene Sillas Jensen & Lars Nesset Romundstad Time again for young people with OI to come together The 7th of September 2023, it was once again time for the young people of the European OI community to come together. This time in Lido di Jesolo, in the Veneto region of Italy, one hour…
Interview with Simey Truong, Germany My name is Simey Truong. I am 26 years old and have OI type 3, so I am bit short (I am only 1.12m tall) and sitting in a wheelchair. During my childhood I had a lot of fractures, but they didn’t stop me from experiencing a lot. I’m a…
OIFE youth event 2019 was hosted by the Spanish OI Society AHUCE and saw 49 participants between the ages of 18 to 35 from all over Europe (10 different countries in total) come together for a variety of activities and socialising. Gareth Cumming from the UK attended the event and here is what he wrote:…
“I would so much like young people to have a sense of the gift that they are.” – John Denver. It took me a good while to find the perfect quote to start this editorial, because for some reason most quotes about youth I found were either bitter or condescending. Instead, I wanted to highlight…
