Seven hands on a pileADVOCACY

OIFE Part of strong coalition

Over 220 organizations have come together from across the globe to form a Coalition in support of a World Health Assembly (WHA) Resolution on Rare Diseases. OIFE is one of these. 10 February 2025 marked an important turning point for the Resolution and the global rare disease community. The #Resolution4Rare has been officially recommended for…

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MEDICAL

Key4OI – Past, Present and Future

Who are you and what is your relationship to OI? I am Dagmar Mekking from the Netherlands. I am a mother of a 15 year old daughter with OI. Also I am the director of Foundation Care4BrittleBones. The purpose of the foundation is to improve quality of life for people with OI through research. What…

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