Interview with Dr Jean-Pierre Chanoine, MDPhD, FRCPC (Academic), Clinical Professor, Endocrinology and Diabetes Unit British Columbia Children’s Hospital, President Global Pediatric Endocrinology and Diabetes (GPED), Vancouver, Canada Who are you and what is your relationship to OI? I am a paediatric endocrinologist with a longstanding interest in Osteogenesis Imperfecta (OI). I provide clinical care for…
Over 220 organizations have come together from across the globe to form a Coalition in support of a World Health Assembly (WHA) Resolution on Rare Diseases. OIFE is one of these. 10 February 2025 marked an important turning point for the Resolution and the global rare disease community. The #Resolution4Rare has been officially recommended for…
Who are you and what is your relationship to OI? I am Dagmar Mekking from the Netherlands. I am a mother of a 15 year old daughter with OI. Also I am the director of Foundation Care4BrittleBones. The purpose of the foundation is to improve quality of life for people with OI through research. What…
