SILVIA FALCIER Who are you and what is your relationship to OI? My name is Silvia, and I am 25 years old. I am an avid enthusiast of fashion and contemporary art. Holding a degree in fashion, if I were to choose a designer to admire, it would undoubtedly be Yohji Yamamoto, a figure who…
NATALIA VERDUZCO. Who are you and what is your relationship to OI? My name is Natalia Verduzco, I am 29 years old, born in the beautiful country of Mexico and being very proudly both French and Mexican. I belong to the amazing community of OI-people myself, enjoying my path through this world one wheel at…
Dear members of the international OI-community! In Australia the champagne has been uncorked already, but in the rest of the world we are in different ways preparing the celebration of another year coming to an end. It is also a celebration of the opportunities of a New Year called 2022, which we hope will be…
Ingunn Westerheim and Rebecca Tvedt Skarberg from Norway are the recipients of this year’s Black Pearl Volunteer Awards, an international award that recognizes their volunteer efforts for people with the rare condition osteogenesis imperfecta (OI). How it all started We do the interview on Zoom, since both ladies are at risk for Covid19. But what…
“I would so much like young people to have a sense of the gift that they are.” – John Denver. It took me a good while to find the perfect quote to start this editorial, because for some reason most quotes about youth I found were either bitter or condescending. Instead, I wanted to highlight…
