Interview with Anna Rossi, newly resigned OIFE Board Member & Communication Manager. You have been a Board member of OIFE for more than 8 years Anna. And you have done a fantastic job as OIFE Communication Manager! Before you leave us for the Paralympics, we would like to ask you a couple of questions to…
The Board of OIFE usually have two face to face meetings per year. The 2nd one in 2024 took place in Brussels from November 29th to December 1st. After a long day of meetings with planning OIFE events and projects for the next two years, it was nice to share a dinner together in Brussels.…
NATALIA VERDUZCO. Who are you and what is your relationship to OI? My name is Natalia Verduzco, I am 29 years old, born in the beautiful country of Mexico and being very proudly both French and Mexican. I belong to the amazing community of OI-people myself, enjoying my path through this world one wheel at…
Ingunn Westerheim and Rebecca Tvedt Skarberg from Norway are the recipients of this year’s Black Pearl Volunteer Awards, an international award that recognizes their volunteer efforts for people with the rare condition osteogenesis imperfecta (OI). How it all started We do the interview on Zoom, since both ladies are at risk for Covid19. But what…
Who are you and what is your connection to OI? I am Julien Delaye, 26 years old, living in Belgium. Over the past seven years, I studied marketing, European Public Health, and more recently Public Policy and Administration, which took me to several places such as Denmark, the Netherlands, Finland and Ireland. A few months…
“I would so much like young people to have a sense of the gift that they are.” – John Denver. It took me a good while to find the perfect quote to start this editorial, because for some reason most quotes about youth I found were either bitter or condescending. Instead, I wanted to highlight…
