OI-volunteers in Vietnam
February 7th OIFE had the pleasure to meet (online) the founder of a Vietnamese organization for rare diseases (VORD), which focuses (at the moment) on OI, SMA and Duchenne. Their co-founder Ly Ngo has OI herself and they have a lot of collaboration with scientists and other stakeholders. You can find them online on: https://www.rarediseases.vn/