Researching woman looking through microscopeMEDICAL

Research grant opportunity

The Research Grant Scheme from the Brittle Bone Societyle Bone Society (BBS) is still open for applications. You can apply if you are a researcher within the field of Osteogenesis Imperfecta in the UK or in other countries. Application close May 31! You can find out more and apply here.  

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STORIES

Ferre and Martijn in London

To celebrate Rare Disease Day, the pharmaceutical company Mereo Biopharma invited Ferre Castrel and Martijn Dillen from Belgium to its headquarters in London to talk about their lives with OI. OIFE Magazine reached out to them to learn about the experience. Hi guys, thanks for doing this interview! Can you briefly introduce yourselves? Ferre: “Hello!…

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ADVOCACY

We need the UK in ERN BOND

OIFE is supporting the Genetic Alliance UK’s ProtectERNs campaign that calls on the UK government and the EU to secure the sustained involvement of the UK in European Reference Networks (ERNs) post Brexit. This is especially important for the network for rare bone disorders (ERN BOND), because they have a substantial number of UK healthcare…

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