Written by Dimitra Micha, member OIFE Scientific Advisory Board The 26th annual OIF Scientific Meeting in Chicago (April 22-24 2026) welcomes key OI developments from US and Canada scientists and clinicians working on improving health conditions for people with OI. Attendance of more than 100 OI professionals ensures adequate representation of scientific outcomes and clinical…
By Natalia V, OIFE Board member OIFE was represented at the 5th European Symposium on Transition in the beautiful city of Paris. The event took place from the 25th to 26th of September 2025. The Symposium was attended by 200 people, from 20 countries. An event that takes place every two years and has been…
On Thursday, July 3, 2025, Dr. R.J.B. (Ralph) Sakkers of Loenen aan de Vecht was appointed Knight in the Order of the Dutch Lion. He received this royal honor during his farewell symposium at the University Medical Center (UMC) Utrecht, presented by Mayor Ap Reinders of the municipality of Stichtse Vecht. Dr. Sakkers has been…
As Ingunn wrote in her editorial, in 2026 we are organizing a topical meeting in Copenhagen about phases of adult life with OI – including getting older with OI. The meeting will be held from June 18 to 21 in Scandic Strandpark hotel, close to Copenhagen international airport. What kind of topics would YOU like…
Interview with Eric Orwoll, Professor of Medicine, Division of Endocrinology, Diabetes and Clinical Nutrition, School of Medicine and Dr. Lars Folkestad, member of OIFE’s Medical Advisory Board Due to common interests in adults with OI, Prof. Eric Orwoll and Dr. Lars Folkestad identified researchers and clinicians who have worked on adult care and formed a…
Written by Lars Romundstad, OIFE volunteer from Norway EURORDIS is the umbrella association for organizations for rare conditions in Europe. And the 26th and 27th of May 2023, OIFE was represented at the EURORDIS Membership Meeting in Stockholm. Lars Romundstad, represented the OIFE together with Rebecca Tvedt Skarberg, who is also a Board member of…
What is the Transfer Tool? The OI transfer tool is a portable, clinically meaningful, person-focused tool designed to help improve the transition experience for adolescents and young adults living with OI. Once completed, the tool summarizes the adolescents’ time spent receiving OI care in the paediatric setting, and is intended to be given to their…
