Mark your calendars for the OIFE Topical Meeting “Phases of Adult Life with OI and other Rare Bone Conditions”, taking place 9-12 September 2027 at Quality Expo, Oslo, Norway. The Board of OIFE has decided to move the Topical Meeting to September 2027, taking place in Oslo instead of Copenhagen. This to keep the participant…
We regret to inform you that the OIFE Board has made the difficult decision to postpone the OIFE Topical Meeting “Phases of Adult Life with OI”. The meeting, which was planned to take place in Copenhagen in June 2026, will therefore not be held this year. We had been very much looking forward to the…
As Ingunn wrote in her editorial, in 2026 we are organizing a topical meeting in Copenhagen about phases of adult life with OI – including getting older with OI. The meeting will be held from June 18 to 21 in Scandic Strandpark hotel, close to Copenhagen international airport. What kind of topics would YOU like…
In February I turned fifty. 50 years! When I see the number, I still cannot really grasp it. When I was younger, I felt fifty sounded really really old. And maybe it is? After all – I have probably lived more than half of my life. Have I accomplished everything I want? Do I still…
OIFE’s 5th Topical Meeting “Balancing Life with OI” took place in Stockholm, Sweden, in June 2023. The main topic of this international conference was pain in OI and its impact for instance on physical and mental health, sleep, fatigue, mobility, relationships/families and work/life balance. Here are some impressions from participants: Alessandra Tolaccia My name is…
The Balancing Act: Navigating Pain and Life with OI in Stockholm 34 percent of all individuals with OI report that pain has influenced their career choices, and 30 percent also state that pain affects their social life. This is just one of the many facts we learned during the OIFE’s Balancing Life With OI conference…
OIFE’s 5th Topical Meeting “Balancing Life with OI” will take place in Stockholm, Sweden, from June 9-10 2023. The main topic of this international conference is pain in OI and its impact on physical and mental health, sleep, fatigue, mobility, relationships/families and work/life balance. The scope will also cover other rare bone conditions. Anyone interested in the…
REGISTRATION IS OPEN – EARLY BIRD DEADLINE JANUARY 31 Lack of understanding and poor management of pain severely impacts the quality of life of children and adults with OI. Under the title “Balancing life with OI” we are organising a topical meeting on the neglected subject of the causes, assessment and management of pain in…
