Ca. 150 people gathered on Zoom on October 14th to hear an update on the different clinical trials that’s going on in OI at the moment. Lot’s of questions and interaction. Two of the trials are still recruiting: – The Losartan trial (adults) – The Evenity trial (children with OI) Are you or your child…
On October 14th, 2025 we are offering our annual update from ongoing international clinical trials on OI. This year will be a very important one, because we hope to have final results coming out of 2-3 of the bigger fracture reduction trials. The following trials are confirmed to give a status: * The Cosmic and…
OIFE supports and encourages the advancement into research to find new treatments, improve diagnosis and aid a better understanding of OI. We strive to keep the OI community informed of what clinical trials are ongoing. As part of this we are hosting our 2nd clinical trial update webinar on October the 22nd, 2024. The goal…
On the 24th of October, OIFE hosted a webinar for the OI community about clinical trials and updates. 235 people from 52 countries signed up. Attendees were a mix of health professionals, scientists, OI clinicians, industry professionals, and individuals with OI and their family members. OIFE is excited to share this current OI study and…
The second part of OIFE’s annual meeting on June 4th 2022 was an educational webinar open to anyone. And a diverse group of ca 80 participants including OIFE-people, clinicians, researchers, industry people and other interested individuals came together to hear about news from the international OI-community. News from OIFE, ERN BOND & others The first…
Come join us on June 8th for a webinar with an update about the TOPAZ trial and OI-research. The event is hosted by the university of Edinburgh and OIFE is one of the contributors together with the Brittle Bone Society. Register for free here Read more about the TOPAZ trial in the OIFE Magazine
Treatment of OI with Parathyroid hormone and Zoledronic acid Interview with Prof. Stuart H. Ralston, University of Edinburgh, Western General Hospital, UK Who are you & what is your relationship to OI? I am a physician and rheumatologist with a special interest in the treatment of bone diseases. I have been taking care of patients…
