RESEARCH

New PhD: Extra skeletal complications in OI

New PhD in OI – Extra skeletal complications in OI Interview with Silvia Storoni Who are you & what is your relationship to OI? I am Silvia Storoni, a physician specializing in internal medicine with a particular interest in endocrinology. A few years ago, I came in contact with Dr. Marelise Eekhoff and Dr. Dimitra…

READ MORE
oife flyer update clinical trial)EVENTS

OIFE Webinar: Update on Clinical Trials 2023

We invite you to register for a 1,5 hour webinar called “Clinical Trial Update 2023”. GOAL & TARGET GROUP The goal of the webinar is to update the OI-community about ongoing clinical trials – both those who are recruiting and others. The target group is anyone interested in OI-related research – both professionals and people…

READ MORE
RESEARCH

The TOPAZ Trial is recruiting adults with OI

The TOPAZ Trial is recruiting adults with OI in UK, Ireland, Netherlands, France and Denmark. The trial is designed to determine if anabolic therapy with Teriparatide (TPTD) followed by a single infusion of zoledronic acid (ZA) is superior to standard care in adults with OI. The trial is open to anyone over 18 years with…

READ MORE
Translate ยป