Who are you and what is your relationship to OI? My name is Vern van den Boorn and I was born with Osteogenesis Imperfecta Type 5. For me, this means dealing with some specific challenges like calcifications in the forearms and reduced mobility in certain joints. Since 2024 I have been the secretary of the…
Interview with Dimitra Micha, Molecular geneticist, PhD, The Netherlands Who are you and what is your relationship to OI? In my current function I am assistant professor and head of the Connective Tissue Diseases section in the Human genetics department of Amsterdam UMC in the Netherlands. For the last 15 years I have been performing…
Through social media we learned that Jeanette Chedda is running for Parliament in the Netherlands. Her main cause is disability politics and fighting for diversity. The elections are coming up in just a few days. Can you tell us a little bit about yourself? I am Jeanette Chedda (37), I have OI type three. I…
Since 2019, the Netherlands has an unofficial Minister of Disability Affairs. Rick Brink who has OI and is using an electric wheelchair, won this appointment during the broadcast of the television programme ‘De minister van Gehandicaptenzaken’ (The Minister of Disability Affairs). Brink was elected by a jury, including former cyclist Leontien van Moorsel, cabaret artist…
