RareX Conference in South Africa

By Rageema Livingstone, President of the South African OI-association (Associate OIFE member) For four days, Johannesburg pulsed with the collective energy of hope and collaboration as RareX unfolded, hosted by Rare Diseases South Africa (RDSA). This pivotal event, held from February 14th to 17th, 2024, brought together a diverse tapestry of voices – patient groups, healthcare…


Meet Rageema from South Africa

Interview with OIFE Representative Rageema Livingstone, Representative of OIFE’s Associate Member South Africa Who are you and what is your relationship to OI? My name is Rageema Livingstone and I live with my husband and 3 kids in a suburban area of Cape Town South Africa. I have a 16 year old daughter with type…

Girl with woman in south africaMEMBERS

New OIFE member: Brittle Bones South Africa

By Rageema Livingstone, chair of Brittle Bones South Africa  Who are you and what is your relationship to OI? My relationship with OI started nearly 12 years ago when my daughter was born with the condition. She is diagnosed as type 3 and currently wheelchair bound as she is experiencing bone thinning to the extent…

Translate »