Painting Shows child and rainbowMEDICAL

The Dream machine: How to deal with pain in children

At the “Balancing Life with OI” conference, Kelly Thorstad from Shriners Hospitals for Children – Canada in Montreal, shared their strategies on how to deal with pain in children with OI. The talk included some information about the therapeutic children’s book Dream Machine. See more information about the book and interviews with several known OI-professionals…

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RESEARCH

SISOM OI ASSESSMENT & COMMUNICATION TOOL

The research team at Shriners Hospitals for Children Canada just published “Experiences of Children With Osteogenesis Imperfecta in the Co-design of the Interactive Assessment and Communication Tool Sisom OI: Secondary Analysis of Qualitative Design Sessions” in the JMIR Pediatrics and Parenting. The people behind the article were Maia Siedlikowski, Lianna Curiale, Dr. Frank Rauch and…

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MEDICAL

The Good2Go MyHealth Passport – now available for OI!

There is great news coming from Shriners Hospitals for children, Canada! On the other side of the Atlantic, a promising tool has gained increasing popularity and is likely to represent an important step further in both transitional care and patient empowerment worldwide: the Good2Go MyHealth Passport. Developed as an online tool, the MyHealth Passport is…

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MEDICAL

Transition – OI care from childhood to adulthood

What is the Transfer Tool? The OI transfer tool is a portable, clinically meaningful, person-focused tool designed to help improve the transition experience for adolescents and young adults living with OI. Once completed, the tool summarizes the adolescents’ time spent receiving OI care in the paediatric setting, and is intended to be given to their…

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