Researching woman looking through microscopeEVENTS

Registration and abstract submission open – OIFE Investigator Meeting

Registration and abstract submission is open now! The umbrella association Osteogenesis Imperfecta Federation Europe (OIFE), together with members from our Medical Advisory Board, invite you to register for the third virtual European Investigator Meeting for osteogenesis imperfecta (OI) on November 15th, 2024 (on Zoom). The event is free. Goals Highlight new OI research Facilitate collaboration…

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ADVOCACY

The IMPACT Survey has a new home!

Launched in time for Wishbone Day 2024, the new IMPACT Survey website helps to raise awareness of osteogenesis imperfecta by capturing the lived experience of the condition, as told by people with OI, their caregivers and close relatives. On the IMPACT Survey website, you will be able to find out more about this landmark survey and…

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Photo of screen and presenterRESEARCH

OIFE at Advanced Therapies Seminar

Heavy snowfall didn’t stop osteogenesis imperfecta from being well represented at an educational seminar on challenges and possibilities in advanced therapies. The event was hosted on 13 March 2023 by Oslo University Hospital in Norway. Rebecca Tvedt Skarberg was on the organizing committee, Inger-Margrethe Stavdal Paulsen from Norsk Forening for Osteogenesis Imperfecta (NFOI) gave a talk about…

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OIFE

OIFE Investigator Meeting

On November 18th OIFE hosted our very first OIFE Investigator Meeting. More than 140 participants from Europe and beyond took part in the online event which included mainly researchers, clinicians, but also some industry representatives, patient representatives and students. The programme both included interesting talks about what is going on in European OI research (basic…

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RESEARCH

PhD position in molecular/cell biology

Are you looking for a PhD position in molecular/cell biology? Check out the doctoral position of molecular/cell biologist at the Centre for Connective Tissue Research of Dr. D. Micha, Human Genetics Department, Amsterdam UMC! The PhD student will be involved in the development of pharmacological and gene therapy for the rare genetic bone fragility disorder Osteogenesis…

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EDITORIALS

Patients, people or partners?

OIFE believes that all clinical trials and research projects affecting OI directly, should have some kind of patient involvement. Patient involvement can happen in different ways and in different phases of a project. Sometimes advice from a new and unexperienced parent or a child is needed. Other times a person with OI, who can represent…

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EDITORIALS

Do No Harm!

Research is a strange thing. Some people think research is too slow and too complicated. Others are sceptical and wouldn’t like to be the guinea pig. From the point of a clinician the most important goal in doing research is: Do no harm! Issue Nr. 4-2021 of the OIFE Magazine is dedicated to research and…

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Profile photos of four smiling OI-researchersCONFERENCES

OIFE INVESTIGATOR MEETING 2022

SAVE THE DATE – 1st VIRTUAL OIFE INVESTIGATOR MEETING November 18th 2022, Online The umbrella association Osteogenesis Imperfecta Federation Europe (OIFE) is together with members from the Medical Advisory Board of OIFE inviting you to save the date for the very first European Investigator Meeting for osteogenesis imperfecta (OI). This virtual one day meeting will…

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RESEARCH

The OIF Geisman Grant

The Osteogenesis Imperfecta Foundation (OIF) awards Michael Geisman Fellowship grants to post-doctoral trainees who are currently working on projects with clear relevance to OI, or who have projects that will enable them to develop expertise in OI research. Investigators from other countries than the USA, can also apply. The application cycle is now open and…

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