OIFE has a number of people who have graduated from the Open Academy courses in Barcelona, organized by EURORDIS-Rare Diseases Europe. Applications are now open for the 2026 editions of the Open Academy School on Medicines Research & Development and the Open Academy School on Scientific Innovation & Translational Research! The event will take place…
The Research Grant Scheme from the Brittle Bone Societyle Bone Society (BBS) is still open for applications. You can apply if you are a researcher within the field of Osteogenesis Imperfecta in the UK or in other countries. Application close May 31! You can find out more and apply here.
Friday November 15th the 3rd edition of the OIFE Investigator Meeting took place. This time we had a record number of 325 people signing up from 56 countries, showing the huge outreach of OIFE. We had ca 210 participants signing in at the meeting itself. These were mostly OI researchers, which is the target group…
Are you interested in participating in an Important Survey on Skin Conditions and OI? The survey is open to people with OI all over the world: https://tinyurl.com/OIskinsurvey Oregon Health and Science University in the USA is conducting a survey to understand the prevalence and impact of skin symptoms in individuals with OI. OI is a…
Registration and abstract submission is open now! The umbrella association Osteogenesis Imperfecta Federation Europe (OIFE), together with members from our Medical Advisory Board, invite you to register for the third virtual European Investigator Meeting for osteogenesis imperfecta (OI) on November 15th, 2024 (on Zoom). The event is free. Goals Highlight new OI research Facilitate collaboration…
Launched in time for Wishbone Day 2024, the new IMPACT Survey website helps to raise awareness of osteogenesis imperfecta by capturing the lived experience of the condition, as told by people with OI, their caregivers and close relatives. On the IMPACT Survey website, you will be able to find out more about this landmark survey and…
We were two people (Alessandra and Ingunn) who represented OIFE at the 2nd Registries Symposium of the two registries EuRR-Bone (rare bone conditions) and EuRRECa (endocrine conditions) on April 22nd 2024. The Symposium in Milan was attended by 90 people (60 in person and 30 online) from 22 different countries and made the event a resounding success! We got…
Heavy snowfall didn’t stop osteogenesis imperfecta from being well represented at an educational seminar on challenges and possibilities in advanced therapies. The event was hosted on 13 March 2023 by Oslo University Hospital in Norway. Rebecca Tvedt Skarberg was on the organizing committee, Inger-Margrethe Stavdal Paulsen from Norsk Forening for Osteogenesis Imperfecta (NFOI) gave a talk about…
On November 18th OIFE hosted our very first OIFE Investigator Meeting. More than 140 participants from Europe and beyond took part in the online event which included mainly researchers, clinicians, but also some industry representatives, patient representatives and students. The programme both included interesting talks about what is going on in European OI research (basic…
