ADVOCACY

OIFE at Council of Federations

The Council of European Rare Disease Federations (CEF) of the European rare disease umbrella EURORDIS provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases. We were three people who represented OIFE at the CEF-meeting in Paris this week. Among the topics were mental health…

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OIFE

In 2021 we made an impact together!

Dear members of the international OI-community!  In Australia the champagne has been uncorked already, but in the rest of the world we are in different ways preparing the celebration of another year coming to an end. It is also a celebration of the opportunities of a New Year called 2022, which we hope will be…

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