Today marks the launch of the OIFE awareness campaign connected to Rare Disease Day which takes place on the last day of February each year. What is Rare Disease Day? The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on people’s…
On May 5th 2020 OIFE will be the host of the periodical #tuesdaytakeover organized by Rare Revolution Magazine. Rare Revolution Magazine Rare Revolution Magazine gives a voice – and a platform – to patients, industry professionals, clinical and healthcare providers and the patient groups and charities that support over 8000 different rare conditions. Created by…
In 2021 Jon-Kristian (12) will be one of the faces of Rare Disease Day – an annual international awareness day celebrated on the last day of February. Get to know all the faces of #RareDiseaseDay 2021 on this webpage. Jon-Kristian lives in Bergen, Norway. He loves doing e-sport and playing board games with his family.…
