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Meet Jon Kristian from Norway

In 2021 Jon Kristian (12) will be one of the faces of Rare Disease Day – an annual international awareness day celebrated on the last day of February. Jon-Kristian lives in Bergen, Norway. He loves doing e-sport and playing board games with his family. Once a week he makes dinner for the family, together with…


#tuesday takeover

On May 5th 2020 OIFE will be the host of the periodical #tuesdaytakeover organized by Rare Revolution Magazine.   Rare Revolution Magazine  Rare Revolution Magazine gives a voice – and a platform – to patients, industry professionals, clinical and healthcare providers and the patient groups and charities that support over 8000 different rare conditions. Created by…

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