EDUCATIONAL

Join the European Rare Bone Registry EuRREB

As the co-chair of the steering committee, Ingunn Westerheim encourage you to join the growing EuRREB (European Registries for Rare Endocrine and Bone Conditions) network and contribute to advancing knowledge and care for patients with rare endocrine and bone conditions.  By becoming a participating centre, you can contribute valuable clinical data, collaborate with an international…

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EuRRbone logoRESEARCH

Provide OI Data to e-Rec !

The e-REC is an electronic reporting system which captures activity and allows for a better understanding of the occurrence of rare bone conditions incl. OI. The platform is open to ALL centers who see people with OI and other rare bone conditions. WHAT IS EURR-BONE? The EuRR-Bone (European Registry for Rare Bone and Mineral Conditions)…

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