ADVOCACY

OIFE at ERN BOND Meeting in Oslo

02/06/2026By

From May 28-29 the the different clinicians and patient representatives from European Reference Network on Rare Bone Diseases (ERN BOND) were meeting in Oslo at their annual meeting. OIFE was represented by Rebecca T. Skarberg (ERN BOND epag) on site and Ingunn Westerheim, who took part online. Topics covered were joint replacement in OI and…

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MEDICAL

Other Rare Bone Diseases than OI: FOP

18/01/2024By

Because some of the other rare bone conditions are very rare or very little known, OIFE can play a role in creating awareness and spreading information about these conditions, which very often have a lot of commonalities with OI. This is why we have started a column about other rare bone conditions, where we will…

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