My name is Isis Atuncar, I am from Peru, and I was diagnosed with OI when I was born in 1986. I had the opportunity to receive medication and surgical treatment in the USA. That treatment improved my quality of life. When we were back in Peru, my parents and other families together formed the…
Interview with María Barbero, Founder and President of Padrinos-OI Padrinos-OI is a non-profit organization (and supporting member of the OIFE) that originally provided sponsorships with the aim of helping individual patients with OI where medical care would otherwise be impossible. Now Padrinos-OI only works with national organizations that ensure the framework conditions for professional medical…
