OIFE at RBD Summit

On December 6th three representatives from OIFE took part in the first edition of the Rare Bone Disease (RBD) Summit: Oliver Semler Ingunn Westerheim Inger-Margrethe Stavdal Paulsen On December 14th we will attend the second half of the two half-day multi-stakeholder meeting. The RBD (Rare Bone Disease) Summit is a global multi-stakeholder group meeting that aims to provide a platform…

Photo of three female doctors. Photo text: Survey opportunity. Help orthopedic surgeons learn about what's important for people with OI.RESEARCH

Can you help OI-surgeons get wiser?

A group of orthopedic surgeons in the USA with extensive experience in treating OI have come together to learn even more about the patient experience. Please take a moment to complete this survey: Your participation will help these OI experts better understand the needs of people living with OI. A message from dr. Flanagan,…

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