ADVOCACY

Meeting on Patient centricity in OI Research

The 2nd Remedi4All multi-stakeholder meeting “Ensuring patient centricity in Osteogenesis imperfecta research” has taken place in Bologna on 13th June 2024. OIFE was represented by several representatives of the OI Community giving examples and highlighting the importance of patient engagement and patient centricity in OI research, design and follow up of clinical trials, treatments and…

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ADVOCACY

Empowering patient advocates

We are excited to announce that EURORDS are taking applications for the School on Medicines Research & Development and the School on Scientific Innovation & Translational Research. Both schools will take place in-person on 3-7 June 2024 in Barcelona! Would you like to join? Applications will close on 27 October 2023. Are you wondering why empowering patient…

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ADVOCACY

OIFE at Rare Disease Week

Rare Disease Week (RDW) is a brand new week-long series of events organized by EURORDIS which started February 22nd 2021. It included many webinars that targeted on rare disease patient advocates. The goal was to empower them with knowledge and skills so they can effectively participate in advocative activities at a European level and influence…

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