ADVOCACY

OIFE at ERN BOND Meeting in Oslo

02/06/2026By

From May 28-29 the the different clinicians and patient representatives from European Reference Network on Rare Bone Diseases (ERN BOND) were meeting in Oslo at their annual meeting. OIFE was represented by Rebecca T. Skarberg (ERN BOND epag) on site and Ingunn Westerheim, who took part online. Topics covered were joint replacement in OI and…

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ADVOCACY

Rare Conversations

18/09/2025By

Join OIFE and other stakeholders at RareConversations: Advancing Rare Disease Healthcare! A live global forum bringing together rare disease advocates, experts, and patient voices to spotlight the economic and health system burden of rare diseases and explore how insights can drive meaningful change. The sessions will be on Tuesday, 23 Sept. 2025: Session 1: 07:00…

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