Mark your calendars for the OIFE Topical Meeting “Phases of Adult Life with OI and other Rare Bone Conditions”, taking place 9-12 September 2027 at Quality Expo, Oslo, Norway. The Board of OIFE has decided to move the Topical Meeting to September 2027, taking place in Oslo instead of Copenhagen. This to keep the participant…
Interview with Karina Prokopiuk, co-founder of the Ukrainian Association Crystal People. For Rare Disease Day campaign 2026, Karina agreed to share her experience with us, being the mother of a children with OI. Can you share your experience with balancing personal and professional life with a child with OI? Balancing motherhood and professional life with…
Register at Early-Bird Rate latest July 29! The 15th International Conference on Osteogenesis Imperfecta (ICOI 2025) The Organizers are pleased to announce that the 15th International Conference on Osteogenesis Imperfecta (ICOI 2025) which is organized by Department of Orthopaedics and Traumatology of The University of Hong Kong, will be held on 29-31 October 2025 at the Hong…
OIFE’s AGM & 2025 Conference in Oslo: Unpredictable weather, false alarms and the missing pieces in the OI-puzzle The 2025 OIFE AGM and conference in Oslo focused on team building, mental health, youth engagement and knowledge gaps in OI-research. People with OI are used to preparing for the unpredictable, and there’s hardly anything more unpredictable…
In February I turned fifty. 50 years! When I see the number, I still cannot really grasp it. When I was younger, I felt fifty sounded really really old. And maybe it is? After all – I have probably lived more than half of my life. Have I accomplished everything I want? Do I still…
Summary written by Taco van Welzenis, OIFE Honorary Member Due to the fast developments in the field, OIFE decided to organize another update on clinical trials after the first edition in 2023. An amazing number of 278 people from 55 countries (marked in blue) signed up for the OIFE Clinical Trial Update which took place…
Interview with Marie Coussens, PhD fellow Ghent University, Belgium Who are you & what is your relationship to OI? I’m Marie Coussens, a physiotherapist living in Belgium and I obtained my PhD last year in October 2023 in health and life sciences at Ghent University. I first started my PhD trajectory in adults with hypermobile…
Written By Michael Stewart On November 15, 2024, the Osteogenesis Imperfecta Federation Europe (OIFE) hosted its third virtual European Investigator Meeting. This event brought together researchers, clinicians, patient representatives, and industry professionals from Europe and beyond, all dedicated to advancing osteogenesis imperfecta (OI) research. The meeting aimed to highlight new OI research, facilitate collaboration between…
Written by Silvia Falcier, OIFE Youth coordinator Whoever is reading this article is probably holding their phone with fingers that curl in unusual ways as they stretch upward – or maybe the reader knows someone with this unique characteristic. One thing is certain: if we are here to read about Osteogenesis Imperfecta, we are also…
