I stepped off the train with my heart still racing, nostalgia already settling in. It had only been three days, but as I replayed the moments, I realized something remarkable had happened in that little corner of Germany surrounded by nature, just outside the charming town of Duderstadt. The Youth Event organized by DOIG had…
The announcement you were all waiting for is here: The 2026 Youth Event will be hosted by the German OI-organization Deutsche OI Gesellschaft – Glasknochen e. V. in Duderstadt! If you are between 18 and 35, living in Europe and part of the OI community, don’t miss your chance on living an amazing week-end full…
The OIFE Youth Event 2025 was organised by the OI Polish organization (Stowarzyszenie Osób Z Wrodzoną Łamliwoscią Kosci) who took care of delivering an amazing week-end full of unforgettable activities in Warsaw. SEPTEMBER 4TH This year was a bit different from others because we had a special bonus day for those who wanted to do…
OIFE’s AGM & 2025 Conference in Oslo: Unpredictable weather, false alarms and the missing pieces in the OI-puzzle The 2025 OIFE AGM and conference in Oslo focused on team building, mental health, youth engagement and knowledge gaps in OI-research. People with OI are used to preparing for the unpredictable, and there’s hardly anything more unpredictable…
SILVIA FALCIER Who are you and what is your relationship to OI? My name is Silvia, and I am 25 years old. I am an avid enthusiast of fashion and contemporary art. Holding a degree in fashion, if I were to choose a designer to admire, it would undoubtedly be Yohji Yamamoto, a figure who…
NATALIA VERDUZCO. Who are you and what is your relationship to OI? My name is Natalia Verduzco, I am 29 years old, born in the beautiful country of Mexico and being very proudly both French and Mexican. I belong to the amazing community of OI-people myself, enjoying my path through this world one wheel at…
This year, the Young Event 2024 took place in Norway where our host, the Norsk Forening for Osteogenesis Imperfecta (NFOI) took care of organizing a week-end full of adventures. SEPTEMBER 12th: Everything started on a beautiful and sunny day in Oslo, where we took the bus to our week-end destination: Eidene. After a two hours…
Matilde Medum Nielsen has volunteered to help on the OIFE Youth Coordinator team. Matilde is from Denmark and was born with OI type III. She has been living in Aarhus her entire life until July 2022, when she moved to Townsville in Australia to study and fulfill her dream of becoming a marine biologist. Besides…
Written by Malene Sillas, OIFE Board Member. Growing up from childhood, becoming a young adult, I’ve always felt that whatever I do, it feels like I’m the first person to do it. I remember that the first time I felt that way, I was in my second year of high school. The whole class was…
