Matilde Medum Nielsen has volunteered to help on the OIFE Youth Coordinator team. Matilde is from Denmark and was born with OI type III. She has been living in Aarhus her entire life until July 2022, when she moved to Townsville in Australia to study and fulfill her dream of becoming a marine biologist. Besides…
Written by Malene Sillas, OIFE Board Member. Growing up from childhood, becoming a young adult, I’ve always felt that whatever I do, it feels like I’m the first person to do it. I remember that the first time I felt that way, I was in my second year of high school. The whole class was…
We received a great amount of applications from a record number of countries, for our second OIFE Youth Event. It’s therefore very sad to announce that the second OIFE Youth Event 2022 in Warsaw has been cancelled. Below you will find a message from the Polish organizers: “Some of you may have heard we have…
OIFE Youth Event 2022 (part 1) took place in the Belgian city Bruges (Brügge) from May 5th to 8th after the last two events were cancelled due to the pandemic. The event was organized by the OIFE Youth Coordinators and the Belgian OI-organization ZOI. And how did it go? Read all about it in this…
Interview with Simey Truong, Germany My name is Simey Truong. I am 26 years old and have OI type 3, so I am bit short (I am only 1.12m tall) and sitting in a wheelchair. During my childhood I had a lot of fractures, but they didn’t stop me from experiencing a lot. I’m a…
From May 5 to May 8, 2022 the youth weekend will take place in Bruges, Belgium. Registration is open now and will close February 1st: https://forms.gle/tGH2ZeMkPyPVc8o89 Don’t hesitate to contact the organizers on youth@zoi.be if you have questions!
Thank you to the Brittle Bone Society for organizing the digital youth event in 2021! Participants from around Europe played a game called «Around the World».
OIFE Youth Event was supposed to take place in Poland in August 2020. It was later moved to August 2021. Because of the very uncertain situation around vaccines in Europe and travel restrictions due to Covid-19, the OIFE Executive Committee has decided to move the OIFE Youth Event to Poland in August 2022. This in…
Saturday 13th of June 2020 there will be an informal chat session for people with OI (age 18-35) & friends from all over the world on Zoom! You don’t want to miss this. Will you join us? Questions? Send an email to youth@oife.org Register here before Saturday: https://bit.ly/37iiwfh
