EVENTS

The DOIG Youth Event in Duderstadt

I stepped off the train with my heart still racing, nostalgia already settling in. It had only been three days, but as I replayed the moments, I realized something remarkable had happened in that little corner of Germany surrounded by nature, just outside the charming town of Duderstadt. The Youth Event organized by DOIG had…

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YOUTH

OIFE Youth Event 2025 – new deadline May 20

The OIFE Youth event 2025 will take place from 4th to 7th of September 2025 in Warsaw, Poland. Target group: People with OI age 18-35 from European countries. The goals of the OIFE Youth Event are: * sharing experience & ideas across borders; * networking and getting to know young people with OI in other…

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Group photo of 28 participants raising their arms and hands in wheelchairsEVENTS

OI YOUTH CELEBRATING THE VIKING WAY!

This year, the Young Event 2024 took place in Norway where our host, the Norsk Forening for Osteogenesis Imperfecta (NFOI) took care of organizing a week-end full of adventures. SEPTEMBER 12th: Everything started on a beautiful and sunny day in Oslo, where we took the bus to our week-end destination: Eidene. After a two hours…

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EDITORIALS

Grow up and speak up!

Written by Malene Sillas, OIFE Board Member.  Growing up from childhood, becoming a young adult, I’ve always felt that whatever I do, it feels like I’m the first person to do it. I remember that the first time I felt that way, I was in my second year of high school. The whole class was…

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Photo of Viaggio al Mare MarzottoEVENTS

OIFE 2023 Youth Event

The OIFE Youth Event is an informal meeting for people with osteogenesis imperfecta.  The 2023 edition will be hosted by the Italian OI organization Associazione Italiana Osteogenesi Imperfetta on 7th-10th September 2023. Location: Villaggio al mare Marzotto, 44 Viale Oriente, 30016 Lido di Jesolo, Venice, Italy What can I expect at the OIFE Youth Event?…

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Photo from old town WarsawYOUTH

OIFE Youth Event cancelled

We received a great amount of applications from a record number of countries, for our second OIFE Youth Event. It’s therefore very sad to announce that the second OIFE Youth Event 2022 in Warsaw has been cancelled. Below you will find a message from the Polish organizers: “Some of you may have heard we have…

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A young girl from Asian origin sitting in a manual wheelchair.OIFE

New OIFE Youth Coordinator

Interview with Simey Truong, Germany My name is Simey Truong. I am 26 years old and have OI type 3, so I am bit short (I am only 1.12m tall) and sitting in a wheelchair. During my childhood I had a lot of fractures, but they didn’t stop me from experiencing a lot. I’m a…

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MEMBERS

Around the World Youth Event

The OIFE and the Brittle Bone Society are delighted to host the 2021 Youth Event (digital version). The theme is “Around the World!” From South America to Australasia. Along with a small team of travel mates, you will face challenges in each country, earning Travel Credits to purchase your onward journeys. Which team will cover…

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