MEMBERS

New OIFE Member: SFOI Sweden

From February 2021 OIFE got a new ordinary member organization Sveriges Förening för Osteogenesis Imperfecta (SFOI). Get to know them better through this interview with Lars-Göran Wadén, co-chair of SFOI. Who are you and what is your relationship with OI? Therese Rudolfsson and I, Lars-Göran Wadén, currently share the chairmanship of the OI-association in Sweden.…

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Logo of IOIF IndiaMEMBERS

New OIFE Member India (IOIF)

Meet our new member – the Indian Osteogenesis Imperfecta Foundation (IOIF) Interview with Archana Ravindra, President IOIF As the president of the Indian Osteogenesis Imperfecta Foundation (IOIF), I am honoured to meet  you all. I am Archana Ravindra from Bangalore, India. I was born with OI and was formally diagnosed at the age of 4…

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MEMBERS

IOIF (India) new OIFE Member

OIFE’s ordinary member organizations are European and our main activities are based in Europe. But we collaborate with OI-organizations around the world with the intention to exchange ideas, information and best practices in order to improve lives of people with OI. We have the great pleasure to announce that the Board of OIFE has voted…

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MEMBERS

New OIFE Member: FOICH CHILE

Interview with Andrea Medina, FOICH President Who are you and what is your relationship to OI? I am Andrea Medina, founder and president of the board of the Fundación de Osteogénesis Imperfecta Chile, FOICH. I have OI for this my interest is generating actions that allow other people with OI to develop in their lives,…

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EVENTS

Happy Birthday ASITOI !

OIFE was present at the 35th Associazione Italiana Osteogenesi Imperfetta Onlus anniversary during the Annual National Meeting and Congress. Anna Rossi also gave a speech about OIFE activities and projects! Happy Anniversary ASITOI! Check out the photos from the 35th anniversary of our Italian friends in Associazione Italiana Osteogenesi Imperfetta Onlus! Looks like a great…

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MEMBERS

OIFE member China Dolls

Oliver Semler The Chinese organization China Dolls became an associate member of OIFE in December 2017. Since then we have been learning about the organization and the different activities they have. During spring 2019 we were very happy and honored to be invited to the 6th National Conference for People with OI in Yantai Shandong,…

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MEMBERS

New OIFE member Ghana

We are happy to announce that the Annual General Meeting has voted in favor of accepting OIF GHANA as a new associate member of OIFE. We now have 35 member organizations in our umbrella. Osteogenesis Imperfecta Foundation Ghana was established in May 2017 and is led by chair Justina Yiadom-Boakye. In the article below you…

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MEMBERS

New OIFE member – Ukraine

Who are you and what is your relationship to OI? My name is Karina and I am mother to 8 year old girl with OI type 3. We live in Rovno, which is located in Western Ukraine. Can you tell us a few words about Ukraine? Ukraine is a country in Eastern Europe. It has…

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MEDICAL

Psychosocial aspects in OI

In 2019 Care4BrittleBones would like to build up a network to foster knowledge exchange around psychosocial aspects of OI. The network will be led by Dr. Kara Ayers (photo) from Cincinnati children’s hospital, USA and Dr. Claire Hill from Sheffield’s children hospital, UK. The purpose of the network is to explore key topics of shared…

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