Written by Ingunn Westerheim, OIFE President Why a new Advisory Board? Since we established the first Medical Advisory Board of OIFE in 2018, OIFE has gone through a lot of changes. We have grown to include 41 member organizations, we have more funding to do more activities, we have grown a large network of researchers, clinicians,…
SILVIA FALCIER Who are you and what is your relationship to OI? My name is Silvia, and I am 25 years old. I am an avid enthusiast of fashion and contemporary art. Holding a degree in fashion, if I were to choose a designer to admire, it would undoubtedly be Yohji Yamamoto, a figure who…
NATALIA VERDUZCO. Who are you and what is your relationship to OI? My name is Natalia Verduzco, I am 29 years old, born in the beautiful country of Mexico and being very proudly both French and Mexican. I belong to the amazing community of OI-people myself, enjoying my path through this world one wheel at…
On June 10th and 11th 2023, we came together for OIFE’s Annual General Meeting (AGM). This time we met, in real life, in Stockholm, Sweden. There were approximately 40 people representing 15 ordinary (European) and 4 associate member organizations (incl. USA, Peru, Ahuce Foundation and Care4BrittleBones). On Saturday afternoon we took care of the formal…
In January 2022 a new multidisciplinary (MDT) clinic for osteogenesis imperfecta was established in Ghana. We did an interview with the initiator and woman behind it – Mrs. Justina Yiadom-Boakye, the president and Founder of OIFE’s associate Member Ghana (OIF Ghana). Who are you and what is your relationship with OI? I am Mrs Justina…
From February 2021 OIFE got a new ordinary member organization Sveriges Förening för Osteogenesis Imperfecta (SFOI). Get to know them better through this interview with Lars-Göran Wadén, co-chair of SFOI. Who are you and what is your relationship with OI? Therese Rudolfsson and I, Lars-Göran Wadén, currently share the chairmanship of the OI-association in Sweden.…
Meet our new member – the Indian Osteogenesis Imperfecta Foundation (IOIF) Interview with Archana Ravindra, President IOIF As the president of the Indian Osteogenesis Imperfecta Foundation (IOIF), I am honoured to meet you all. I am Archana Ravindra from Bangalore, India. I was born with OI and was formally diagnosed at the age of 4…
OIFE’s ordinary member organizations are European and our main activities are based in Europe. But we collaborate with OI-organizations around the world with the intention to exchange ideas, information and best practices in order to improve lives of people with OI. We have the great pleasure to announce that the Board of OIFE has voted…
Interview with Andrea Medina, FOICH President Who are you and what is your relationship to OI? I am Andrea Medina, founder and president of the board of the Fundación de Osteogénesis Imperfecta Chile, FOICH. I have OI for this my interest is generating actions that allow other people with OI to develop in their lives,…
