On January 23rd the member organizations of OIFE were invited to the OIFE Leadership Meeting 2023. The purpose of the meeting was to inform the organizations about events and activities going on in the OIFE. The agenda included the following topics: News from OIFE incl. clinical trials Launch of OIF & OIFE pain survey EuRR-Bone…
On January 24th OIFE hosted its 2nd European Leadership meeting to inform our member organizations about news. More than 25 representatives from most of our European member organizations attended. Topics included among others: Information about future events Status on the restructuring of OIFE and moving to Belgium (OIFE 2.0.) Status on the IMPACT survey News…
The European member organizations of OIFE virtually came together on February 1st to learn about what’s happening in pharmacological research and how the patient organizations in Europe can work nationally and on a European level to improve access to new and potential treatments for OI. In addition to the delegates, leaders from the European OI-organizations…
