OIFE

OIFE Leadership Meeting

On January 24th OIFE hosted its 2nd European Leadership meeting to inform our member organizations about news. More than 25 representatives from most of our European member organizations attended.  Topics included among others: Information about future events Status on the restructuring of OIFE and moving to Belgium (OIFE 2.0.) Status on the IMPACT survey News…

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ADVOCACY

First OIFE Leadership Meeting

The European member organizations of OIFE virtually came together on February 1st to learn about what’s happening in pharmacological research and how the patient organizations in Europe can work nationally and on a European level to improve access to new and potential treatments for OI. In addition to the delegates, leaders from the European OI-organizations…

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