OIFE

Welcome new OIFE Webmaster Vern

06/01/2026By

Who are you and what is your relationship to OI? My name is Vern van den Boorn and I was born with Osteogenesis Imperfecta Type 5. For me, this means dealing with some specific challenges like calcifications in the forearms and reduced mobility in certain joints. Since 2024 I have been the secretary of the…

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MEDICAL

Breakthrough in Research on OI Type V

11/11/2024By

Interview with Ronit Marom,MD PhD and Assistant Professor at Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, Texas, USA Who are you & what is your relationship to OI? I am a pediatrician and a geneticist with a special interest in genetic bone fragility. I completed my M.D./Ph.D. degree in Tel Aviv…

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