Article about Spanish OI Population

Orphanet Journal of Rare Diseases has published a paper seeking to estimate the epidemiology of osteogenesis imperfecta (OI) in Spain: ‘Current situation of osteogenesis imperfecta in Spain: results from a Delphi study’.  As well as an estimate of the prevalence and incidence of OI in Spain, the results complement the available evidence of the burden…

Graphic showing bars and linesMEDICAL

Registry Research in Denmark

My name is Lars Folkestad. I am an associate professor and staff specialist at the department of endocrinology at Odense University Hospital. There I am part of the team that follows and cares for adults with OI. We are aiming towards a multi-disciplinary approach to our outpatient OI clinic visits, but most of our efforts…

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