MEMBERS

It seemed impossible at first, but we made it happen

19/02/2026By

Interview with Karina Prokopiuk, co-founder of the Ukrainian Association Crystal People. For Rare Disease Day campaign 2026, Karina agreed to share her experience with us, being the mother of a children with OI. Can you share your experience with balancing personal and professional life with a child with OI? Balancing motherhood and professional life with…

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Ukranian flag with the text Peace for UkraineSTORIES

War in Ukraine – how can you help?

02/03/2022By

There is a brutal war going on in one of OIFE’s member countries, and the last couple of days OIFE has received several questions from people who are concerned about the situation in Ukraine. Many are wondering if there is an OI-organization in Ukraine and how they can be of assistance to people with OI…

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