Mark your calendars for the OIFE Topical Meeting “Phases of Adult Life with OI and other Rare Bone Conditions”, taking place 9-12 September 2027 at Quality Expo, Oslo, Norway. The Board of OIFE has decided to move the Topical Meeting to September 2027, taking place in Oslo instead of Copenhagen. This to keep the participant…
OIFE’s AGM & 2025 Conference in Oslo: Unpredictable weather, false alarms and the missing pieces in the OI-puzzle The 2025 OIFE AGM and conference in Oslo focused on team building, mental health, youth engagement and knowledge gaps in OI-research. People with OI are used to preparing for the unpredictable, and there’s hardly anything more unpredictable…
This year, the Young Event 2024 took place in Norway where our host, the Norsk Forening for Osteogenesis Imperfecta (NFOI) took care of organizing a week-end full of adventures. SEPTEMBER 12th: Everything started on a beautiful and sunny day in Oslo, where we took the bus to our week-end destination: Eidene. After a two hours…
Get in Touch! Jannie D. Hald, MD, PhD from Aarhus University Hospital in Denmark is searching for more OI-professionals in Denmark, Finland, Iceland, Norway and Sweden for the Nordic OI-Collaboration. Synergy: Many similarities due to physically close location The Nordic countries are physically located close together and share many similarities including a long tradition for cooperation.…
Join us for an unforgettable experience at the Youth Weekend in Eidene, Norway, from September 12th to 15th, 2024! Organized by OIFE and NFOI, this event is for youth with OI from every European country, aged 18 to 32. Spaces are limited, so be sure to secure your spot early! You can register here. Registration…
Interview with Ole Rasmus Theisen, dentist and researcher at the TAKO centre (national resource centre for oral health in rare disorders, Norway) My name is Ole Rasmus, and I am a 39-year-old dentist from Norway. My relationship with OI stems back from working with researchers who have studied OI extensively as well as seeing some…
How clinical work, registries, research, guidelines and quality improvement are connected Interview with Lena Lande Wekre, M.D. in the Skeletal dysplasia team at TRS National Resource Centre for Rare Disorders, Norway Who are you and where are you currently working? My name is Lena Lande Wekre and I am a Medical Doctor in the Skeletal…
A new quality registry for rare bone conditions is being developed in Norway. It’s a collaboration between Oslo University Hospital (orthopedic dept.) and the Norwegian centre of expertise for bone conditions TRS kompetansesenter for sjeldne diagnoser. On May 7th an advisory board was established and Ingunn Westerheim & Rebecca Tvedt Skarberg (substitute) from OIFE were…
Interview with Anne Siqveland and Nicolai Wendt (parents of Tellef, 1 year old) Who are you and what is your relationship to OI? We are a Norwegian family of four, Anne (36), Nicolai (34), Edvard (4) and Tellef (1). Tellef was prenatally diagnosed with OI and his multiple fractures and mutation of COL1A2 gene place…
